posted
I am very curious as to what lab tested for the anti-neuronal antibodies? Very few docs including most LLMD's would not even think to test for this.
In my opinion your daughter's test results most likely indicate an infectious organism that is attacking her nervous system. Also it is obviously affecting either digestion or the gallbladder as well to cause the high triglycerides or she has possible issues with glucose metabolism.
Is the leukocyte esterase a blood test or from a urinalysis -- if from the urine indicates a possible bladder or kidney infection.
I personally would try IV antibiotics first before resorting to IV IgG -- which is extrememly expensive and would only be covered by insurance if her bloodwork shows deficiency in immune subclasses.
This is not medical advice. Just my opinion based on hubby's experiences.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
She was taking a Magnesium and Potassium supplement for about six months, could that possibly have anything to do with all of this?
Posts: 166 | From USA | Registered: Feb 2010
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posted
My son is 13 and has had High Alk Phos. for a long time. The Pediatrician and LLMD have assured me that this is normal in a growing teen and not uncommon in children.
There is a special test that can be done to determine if the alk. phos. is due to bone growth or other issue in the body.
Hope that helps a little..
Posts: 66 | From Northern Virginia | Registered: Jun 2010
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posted
My daughter too has a high Alk Phos, her LLMD (Dr J) said this was actually normal in children due to bone growth and not to worry. WIth the liver you need to watch AST/ALT for kids.
My understanding is with the auto immune responses...anti neuronal antibodies, they are usually reversible with proper Bb treatment. IVIG could be beneficial, esp if insurance is willing to pay.
As far as risk, I was under the impression it is given under medical supervision (hospital setting) in the case of a severe reaction. Personally, I am not sure of the risk/benefit of IVIG treatment and would think you may want to discuss that with your LLMD. HOwever, if her symptoms are severe, it may be worth it.
Also, with severe neuro symptoms, which I have, IV ABX has made a huge differnece for me.
Best wishes.
Posts: 747 | From Utah | Registered: Apr 2010
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Her doc mentioned IV, but I have heard horror stories about infection, expense..I am not opposed to it but it is so scary!
I am so glad to hear it has helped you! How long do you think you've had Lyme and how long were you on IV abx?
Posts: 166 | From USA | Registered: Feb 2010
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janet thomas
Frequent Contributor (1K+ posts)
Member # 7122
posted
A very good alternative to IV is IM Bicillin with biaxin or ketek and flagyl or tindimax-for Lyme.
Expect a strong herx around 3-4 weeks, it's ok to take a short break then.
This is not medical advice but only my opinion.
Personally I would never get IV IgG-isn't it prepared from pooled human sera, a potential source of unknown infectious agents?
-------------------- I am not a doctor and this is not medical advice but only my personal experience and opinion. Posts: 2001 | From NJ | Registered: Mar 2005
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