posted
I am at a loss again. Last week I went away for several days to see if I would feel better being away from labs and doctors. It was a long trip but I did no driving. It was still stressful but I have been away before and nothing major happened. Went to the beach last Wednesday and got knocked over by waves several times and even ingested some salt water. By Friday all the muscles in my neck and chest went into spasm.Nerve pain full blown.Chostochondritis is torturous and heart palpitations all day since then. If I had known this I would have stayed home. I am in physical therapy and they can't seem to help me. Not on antibiotics right now and feel like swallowing a fistful but really would like to know what is going on. Toxin release? Anybody?
Posts: 425 | From NY, United States | Registered: Mar 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Sorry to hear of such payback for some enjoyment.
Yes, very common. REST and good adrenal (SIBERIAN Ginseng) and mitochondrial support measures (magnesium, d-Ribose) are really the best. It may take a week or more (even a month) to get back to your normal. Aggressive rest is key here. Nurture yourself. Each day should be a bit better.
From my experience, many times over, it would take me at least a month to get back to my normal from even a walk on the beach. I've had to have strangers take my arms and even walk me off the beach as I would feel so good and just want to keep walking and then just get hit with the inability to move.
I do hope you feel better. Really, with AGGRESSIVE REST, this should get better but it will take time. I would not go to even PT appointments until you get some endurance back. See if they can come to you. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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Topic: NATURAL SLEEP - Links to articles & supplements -
Posts: 48021 | From Tree House | Registered: Jul 2007
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I can think of several possibilities so I'll just throw some thoughts out for you. I really have no clue if any of these are the problem but maybe they will help uncover something helpful for you.
Coastal areas are moldy so it's possible that you were exposed to excessive mold spores. That can mimic a lyme flare.
Perhaps there was contamination in the sea water you ingested?
I think it's possible that being knocked over by waves may have caused some trauma to your body. Was it stressful? Were you frightened? Did you injure your muscles in any way? It is harder for our muscles to heal, even from minor trauma in my opinion. Also, you may have tensed your muscles when you were being hit by the waves. You could have developed some trigger points.
I hope you feel better soon.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Terry raises some good points. Going back over your note to be sure no key points were missed - the cardiac thread details this, but that can take a while to read and absorb. So . . .
to help calm heart palpitations: MAGNESIUM & Sublingual B-6. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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janet thomas
Frequent Contributor (1K+ posts)
Member # 7122
posted
Lots of sun?? Lyme hates the sun, could it be a herx? Rest is probably best.
-------------------- I am not a doctor and this is not medical advice but only my personal experience and opinion. Posts: 2001 | From NJ | Registered: Mar 2005
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Even five minutes in the sun for me would do that to my body. I know we're all different....
some people thrive in the sun.
I'm sitting in a dark bedroom right now.
Hope you can drink a lot of water and tea and let yourself rest.
When i go outdoors, i find a shady spot to be.
ease, peace.....
Posts: 164 | From North America | Registered: Mar 2009
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Sunshine did that to me, too. It would wipe me out. You need some sun, however, for vitamin D. I always wondered whether it was the immune system reacting to the D that caused the pain.
Also, the earth puts off vibrations. When I went to Germany for Bionic 880 treatment, we used vibrations as part of the light therapy that was a similar frequency to the earth's. Typically, you're barefoot at the beach and few other places, so perhaps it had something to do with this.
I think this has to do with why healthy people feel better after a day at the beach.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Thank you for the replies. I took B complex before and my heart went crazy. I think the nerves in my neck are so inflamed that anything that I do including moving will trigger it. Maybe I should go sit in the corner.
Posts: 425 | From NY, United States | Registered: Mar 2005
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karenl
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Member # 17753
posted
Bacteria and parasites die off in the sun, I need to start with minutes and can do more every day. Otherwise I get sick and get fever the next day.
Yes the mold (only indoor mold) could make you tired. People with elevated porhyrins do not tolerate the sun.
Posts: 1834 | From US | Registered: Oct 2008
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posted
I had the same thing happen when I went to the beach for a week last month. I was in such severe pain that I really thought I might not make it one more day. It was awful! It ruined the trip. I haven't been in that much pain since then. I have no idea what it was about the beach. I was thinking it was just the stress of packing everything up and being away from home.
Posts: 618 | From NC | Registered: Oct 2009
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
As I sit here reading this, I am so sad for everybody who cannot simply go to the beach for a day.
And then I get mad because some stupid quacko would tell you it's your fibro. That's what I get told everytime I have severe pain in my body.
I am sending thoughts and prayers your way. I hope that you feel better soon.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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posted
Thanks again. It really depresses me that we all have to suffer so much and that there are no concrete answers.
Posts: 425 | From NY, United States | Registered: Mar 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- amkdiaries,
You said: " . . . took B complex before and my heart went crazy."
For the same reason, B-complex was impossible for me to take for years as it can be too exciting to the glutamate brain receptors. If your B-complex contains nutritional yeast, that naturally contains L-glutamine and can be too much for some people.
However, B-6, alone is calming. And it's needed for magnesium to work. D3 is also needed for magnesium to work.
I know the thought of "sitting in a corner" is disheartening but (in addition to nutritional support) the only way I've recovered from such "payback" experiences is by lying down in a dark and quiet room - for as long as it takes.
Adrenal exhaustion is a huge factor here. Be sure your LLMD is aware of this. Low-dose Cortef may be suggested if other adrenal supplements have failed you.
Keeping output to a minimum with some level of enjoyment is tricky. I hope, somehow, you can find something that will nurture you during this time. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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TerryK
Frequent Contributor (5K+ posts)
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posted
Good point about the sun possibly being the issue.
Keebler also has a good point about resting. When I feel bad after overdoing it, that is the best thing to get me back on my feet.
Karenl wrote: Yes the mold (only indoor mold) could make you tired.
That has not been the case for me, my sister or my niece. If we are in an area that has high levels of mold spores it can definately have a deleterious affect. Spores are found both inside and outside the house.
amk- I know it can be discouraging but hang in there and keep working on your health. It is worth it. I don't measure my level of activity or life by healthy normal people anymore. I try to focus on the improvements that I can measure from a month ago or a year ago.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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posted
Before I started treatment I spent about 2hrs at a park with no shade. I was so stiff and in so much pain, I literally couldn't move the next day. That evening I managed to get to the potty and back...with help. The next day was Sunday, and I did make it to evening service, but I was walking awful funny still. Everyone was asking me if I had arthritis. LOL Uh, yup! You could say that.
Posts: 155 | From Texas | Registered: Oct 2007
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posted
I am trying to find an LLMD as the last one didn't work out but I will try and rest.
Keebler your advice is really good but I am taking B complex almost everyday as a doctor told me I should be taking it to help the methylation problems I have. I do feel hyper on it but today more than ever it affected the nerves in my neck which in turn affect my heart. Not sure what the connection is but the severe muscle spasms in my neck that my physical therapist tried to relieve yesterday are driving the heart problems. I will up the magnesium and buy the B-6 but if you have any other ideas please PM me because I feel pretty sad right now.
The adrenal issue is probably correct because every time I get up and walk around the palpitaions start up again. This is all so horrible.
Posts: 425 | From NY, United States | Registered: Mar 2005
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
You said that you ingested" SALT WATER." I am doing the salt/c protocol which some people do to get rid of Lyme. You could have stirred up some parasites and caused them to go into osmotic shock which caused you to herx.
This is what came out of me and several others after doing this protocol.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Never thought of that. I can't do that protocol due to hypertension. I would be surprised though if something got killed by swallowing some water but I guess anything is possible.
Posts: 425 | From NY, United States | Registered: Mar 2005
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Think it's some kind of herx with the salt water. Far from an expert, but there is the salt and vitamin c way of treatment, and with your high blood pressure you don't go near salt. Body isn't used to sal in any form and u said you can't exercise anymore with the pain. My opinion but I don't know much of anything with this except it's wicked. Talk to u tomorrow and try to sleep.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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