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» LymeNet Flash » Questions and Discussion » Medical Questions » chronic lyme?

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Author Topic: chronic lyme?
rubdoctor01
Junior Member
Member # 27853

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I had lyme disease back in 1993. I caught it early. is it still possible to get symptoms after all these years? I am in the woods every day hiking, could I have gotten it again and it is just not showing up in blood work? In seem to get these syptoms at least once a year.
Posts: 2 | From pittsfield.Ma. | Registered: Aug 2010  |  IP: Logged | Report this post to a Moderator
INEBG
LymeNet Contributor
Member # 27690

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Hi and welcome. I'd say the answer to your questions is "yes." You can have Lyme without it showing up in bloodwork, especially before getting treatment if your immune system is down, and especially if the test, lab, or physician isn't optimal for an accurate diagnosis. As you suspect, since you are in the woods a lot, you may have been reinfected without knowing it. To me, recurring symptoms are a cause for concern about Lyme. That's what I had.
Posts: 212 | From San Francisco Bay Area, California | Registered: Aug 2010  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Member # 743

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YES!! And hiking daily will allow a BIG chance to be reinfected.

Lyme testing is fraught with false negatives. Find a dr who will test you thru Igenex Lab.

www.igenex.com

you need test #188 and 189

Did you post over in Seeking a Doctor?

here:

http://flash.lymenet.org/scripts/ultimatebb.cgi/forum/2?

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Moving this to Medical Questions for more help!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

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How long was your treatment back in '93? Was it more than a few weeks with a combination of Rx to address the cyst form as well as the spirochete form?

Were you also assessed for other tick-borne infections?

Regardless of whether this is chronic lyme that started back in '93 or new infections, it is best to consult with a lyme literate MD (LLMD).

==================

This explains WHY you need an ILADS-educated doctor:

www.clinicaladvisor.com/Controversy-continues-to-fuel-the-Lyme-War/article/117160/

CONTROVERSY CONTINUES TO FUEL THE "LYME WAR"

==========================

www.ilads.org

ILADS

==================

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=forum&f=2&submit=Go

SEEKING A DOCTOR

===================

www.canlyme.com/seronegreasons.html

(27) REASONS WHY A SERONEGATIVE TEST RESULT MIGHT OCCUR

=====================

http://cassia.org/checklist.htm

Symptom checklist for lyme.

=====================

http://cassia.org/essay.htm

When to Suspect Lyme - by John D. Bleiweiss, M.D.

======================

http://www.underourskin.com

Documentary: UNDER OUR SKIN

DVD can be obtained through the site - or maybe borrowed from local support groups.

======================

http://tinyurl.com/5crsjv

Cure Unknown: Inside the Lyme Epidemic (2008) - by Pamela Weintraub

This details what an entire family went through. Having this knowledge of their journey will help others to get better, faster treatment and arrive at a good solid remission.

========================

In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=069911#000000

TIMACA #6911 posted 03 August, 2008

I would encourage EVERY person who has received a lyme diagnosis to get the following tests.

- at link.

===========================

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=020605

MAKING THE MOST OF YOUR LLMD VISIT
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

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-
The very basic key elements regarding treatment choices and self-care:
----------------------

http://www.lymepa.org/html/dr__j__burrascano_september_20_0.html

Burrascano's Powerpoint SLIDE presentation 9-20-08

------------
http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Advanced Topics in Lyme Disease (Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses

Dr. Burrascano's Treatment Guidelines (2008) - 37 pages

------------
As important as any supplements, sections regarding self-care:

Go to page 27 for SUPPORTIVE THERAPY & the CERTAIN ABSOLUTE RULES

and also pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation.

----------------------
This is included in Burrascano's Guidelines, but you may want to be able to refer to it separately, too:

http://www.lymepa.org/Nutritional_Supplements.pdf

** Nutritional Supplements in Disseminated Lyme Disease **

J.J. Burrascano, Jr., MD (2008) - Four pages

============================

It's very important to have this book as a reference tool for self-care and support measures. It answers so many questions in detail that is impossible here on the forum.

http://tinyurl.com/6lq3pb (through Amazon)

THE LYME DISEASE SOLUTION (2008)- by KS, MD

You can read more about it here and see customer reviews.

Web site: www.lymedoctor.com
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
   

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