posted
My illness started in March 2010 with being diagnosed as Mastitis. I had red streaks, then a rash, pain, and was very sick. I went to the ER and was told I had Mastitis, given antibiotics and sent home. Two days later, it was worse so I went back to the ER. This time they gave me IV antibiotics for a couple of hrs. and sent home with oral antibiotics. I seemed to be getting better and then started having pain in my arms, hands, and legs. I went to a pain specialist who did a lot of bloodwork and it came back with Lyme Disease. Amost 6 mos later with daily doses of Doxy, Methyl B-12 injections, antidepressants, and darvocet, I'm no better than I was. My pain specialist has had formal training in treating Lyme. What now? I'm going crazy with pain.
Posts: 18 | From Indiana | Registered: Aug 2010
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posted
You mentioned Red Streaks, please get checked for Bartonella co-infection. You'll need more than just Doxy.
Posts: 269 | From VA | Registered: Jun 2005
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
Just a few thoughts-- I would make sure your doctor is ILADS trained (international Lyme and Associated Diseases society.) Otherwise you are NOT getting the best care, and the doctor is probably not truly Lyme Literate. this makes ALL THE DIFFERENCE. Plus, they will know which co-infections to check for and how to treat. Without the whole picture, getting well stays out of reach.
If you can, get rid of the Darvocet. Very toxic for your system. Toxicity adds more pain and burden to your body.
If antidepressants are not really helping, maybe try to wean off those as well. There are pros and cons to everything, but worth considering. I think the less meds the better. You will be on plenty for Lyme and cos as it is.
And don't forget a clean diet!! Of supreme importance!!
Good luck! Tammy
Posts: 2238 | From East Coast | Registered: Jul 2010
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You may post here to ask for help in finding a Lyme specialist.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Yes you need a LLMD.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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