posted
6 mths iv and orals dx possible ALS dx lyme but getting worse what are the possible reasons for this all i got is........... 1, TICK CAUSED ALS 2 ABX RESISTANCE 3 BABESIA 4 MYCO 5 MORE TIME
would zith alone kill bart/myco?
Posts: 61 | From limbo | Registered: Nov 2009
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posted
Six months is not long in the Lyme treatment world, especially if you are progressed enough to get an ALS diagnosis. At six months, I was still bedridden.
Are you seeing a good LLMD?
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
6 i have ms sx too...... mri, lhermittes, bowel incontinence, tremors
Posts: 61 | From limbo | Registered: Nov 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Sorry to say, these are all very common symptoms of neurolyme and other tick-borne infections.
Both ALS and MS are just names for a set of symptoms. Very often, ALS and MS have turned out to be undiagnosed, untreated or under-treated tick-borne infections (or Cpn).
Do you have a good ILADS-educated LLMD? If so, I would have thought the LLMD would have explained the extent of symptoms and the complexity of treatment - and the time-line. For many with advance neurolyme, it's about a 3 year span before they even begin to feel better.
Did your LLMD not explain that?
Have you also been assessed for other chronic stealth infections such as Chlamydia pneumonia ( www.cpnhelp.org), HHV-6, etc?
Are you addressing the mycoplasma p. adequately?
I don't want to be a downer here, but it is important to know that, yes, indeed - this can be very common. Still -- there is hope. MANY have seen good remissions of long-standing nature.
You may consider a different LLMD - but extreme patience will still be needed. Hold on. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Zith alone will not kill those.
what is ALS?
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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posted
I agree with Keebler. You need to be seeing a very good LLMD. Those are all Lyme symptoms. I went from bedridden to completely healthy, but at six months was still bedridden. It took three years of treatment to get well. And that was short for someone as sick as I was.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- What is your liver support? What are your antioxidants?
How much magnesium are you getting a day?
How much fish oil?
How have you addressed heavy metals? -
Posts: 48021 | From Tree House | Registered: Jul 2007
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quote:Originally posted by tamboski: [QB] honestly, this forum is keeping me alive i would sell my soul to get better
A pretty common opinion around here!
I do hope you have a really good LLMD.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Funny, I was talking a shower and realized I'd forgotten about parasites. I though Gael might have added but glad to see that SixGoofyKids caught the omission.
Gael has lots about the importance of treating parasites (I think its glm1111 if you want to search her posts).
And GiGi, too, discuss parasites but more so heavy metal detox.
Marnie's threads are good, too. She often discusses how minerals and vitamins work together. The important thing Marnie has taught me is that magnesium needs both D3 and B-6 to work.
Between the three of them, they offer keys that are essential.
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