posted
Ok, so I spoke to a lyme disease/tick borne disease researcher at a University today. Super nice. I am sending him some blood samples for testing and possible lyme strain.
ANyways, he asked about my meds...IV rocephin, zith and oral flagyl. I told him the flagyl was really tough, kicked in my neuro symptoms bad (still recovering). He said he felt it was VERY effective in not just killing the cyst, but possibly killing the ketes that emerge as well. Interesting.
Most people have a huge inflammatory response to flagyl...herx...it can't just be that the cyst are dying and the ketes are being released. Maybe the ketes are dying with the flagyl too! That would be great.
He wants me to send him my blood when I do my next flagyl pulse and start to feel bad again. Wonder what he will find. I will let you all know....
Posts: 747 | From Utah | Registered: Apr 2010
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posted
Boy, that would be great if flagyl kills the 'ketes too. I managed to contract c. diff and am on flagyl--who knows when or if I can get back to other antibiotics to treat the Lyme.
Posts: 227 | From Northeast | Registered: Mar 2010
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Is flagyl/tindamax a antibiotic?
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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From what I am reading about flagyl, it kills cysts forms and works on many other infections (c. diff) as well as parasites.
Hope it works as well as some doctors seem to think.
Cheers
Posts: 172 | From ohio | Registered: Feb 2010
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
I wish I can stay on it longer but it makes my tingling worse
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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posted
Very interesting, my son (10) is on flagyl right now and has had great improvments...(knock on wood). He hasn't touched his asthma meds in over 3 mths since beginning treatment! My wife also made significant gains with "brain fog" while on flagyl.
Posts: 52 | From Illinois | Registered: Nov 2009
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blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
I am also having good results with flagyl. I think for me, it is also controlling parasites because when I stop, some things come back.
Posts: 1104 | From N.California | Registered: Jan 2008
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posted
According to the Brorson brothers who are top Lyme researchers...the cyst form of Borrelia is a "spheroblast L-form" it is "cell wall deficient" making it resistant to beta Lactams...rocephin, amox, ceftin. But susceptible to flagyl/tindamx and macrolides. Once a cyst is ruptured and any viable contents expelled...it will turn into a mobile spirochette with a cell wall again. THen it becomes susceptible to beta lactam ABX again.
This is all so confusing!!!! Why cant we just kill it all? I am trying so hard to fully understand how Borrelia works so that I can treat it the most effective way. So very frustrating.
Posts: 747 | From Utah | Registered: Apr 2010
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WildCondor
Unregistered
posted
I love Flagyl. Yes, it does kill the spirochetes aka "ketes" as well as pop the cysts.
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posted
How long did it take for you all to notice improvements on the flagyl?
Posts: 574 | From Out there somewhere | Registered: Jul 2010
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posted
In August, I did a total of 12 days flagyl in pulses...it was a horrible month. September was much better and finally Oct I am feeling much better. I am still pulsing flagyl, but tolerate it so much better.
Posts: 747 | From Utah | Registered: Apr 2010
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