My daughter has had issues since she was born - mostly seemed to be ADD. But now I am wondering, since I am having some symptoms which could be Lyme or MS (lesions on MRI and neurological issues).
My 13yo has: - bipolar II, anxiety and ADD - dizziness on standing - frequent headaches - previously lots of issues with nausea - very disorganized, cannot tolerate stress - sensitive to sounds, heat/cold - frequent ear infections and colic as baby
Can kids be born with Lyme? I guess I should get her tested w/Igenex, right?
Thanks for the insights, Misty
-------------------- 12yo Daughter w/severe anxiety, fatigue, dizziness, BPII - IGM 41+, 23+ and IGG 66+, 41+ Self - Undiagnosed - have peripheral neuropathy, hearing loss, facial tics, fatigue and a MRI w/lots of lesions. Posts: 26 | From Worcester, MA | Registered: Sep 2010
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
I had lots of infections prior to Lyme exposure and think the underlying KPU/pyroluria had something to do with it.
For you, if it is MS, it still could be Lyme. MS has to be caused by something.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
The simple answer is yes children can be born with Lyme.
I've read a couple of Dr. J in New Haven cases where he has treated a few. He is probably a little over a 2 hr drive from Worcester.
Dr. M, less experienced but will also treat children is appx. a 1 hr drive.
Considering the false negatives with blood testing the only way to tell is with trial and error with drug treatments.
The negatives are it can take weeks / months b/4 one sees results and with side effects and support for drugs.
Good luck.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Sounds very much like lyme. My children had all of the same issues and are doing very well with treatment! Yes, they can be born with lyme. Read, "Everything you ever wanted to know about Lyme Disease" by karen Vanderoof- forschner.
The good news is that these symptoms can go away with treatment! But it takes a long time.
I have heard Dr. M in Glastonbury, CT is good. tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Misty many LLMD's can tell you if you have Lyme before antibody/antigen testing.
Many kids will not test positive until after a challenge of antibiotics.
Something to think about if you decide to test before seeing Dr.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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