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» LymeNet Flash » Questions and Discussion » Medical Questions » Pots

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Author Topic: Pots
gatorade girl
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Why does it get worse when there is a lot of brain stimuli? I could not even stand last night. I has to hold on to someone with walking. This is frustrating. Want my old self back.

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gatorade girl

"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain".
Posts: 633 | From baltimore | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
Scrambled_brain
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Have you seen this informative video on POTS/OI ? Its 1.5 hours but worth watching if this is a problem for you.

http://www.youtube.com/watch?v=5iF30TVLaRE

Apparently there is a relationship between POTS / OI and brain chemistry. I don't know if that is the reason.
Posts: 375 | From Southeast | Registered: Sep 2002  |  IP: Logged | Report this post to a Moderator
lymednva
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You can also go to www.ndrf.org, the National Dysautonomia Research Foundation, or POTS Place at www.dinet.org. Lots of good info there.

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Lymednva
Posts: 2407 | From over the river and through the woods | Registered: Apr 2006  |  IP: Logged | Report this post to a Moderator
Keebler
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-
More detail here, too:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/77325

Topic: To everyone with cardiac symptoms please read !
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
gatorade girl
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Thank you!!!!

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gatorade girl

"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain".
Posts: 633 | From baltimore | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
gatorade girl
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Up

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gatorade girl

"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain".
Posts: 633 | From baltimore | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
lou
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Is dizziness when changing position, as in lying down or getting up from a prone position, POTS?

Although there are heart irregulaties, I am not sure they are related directly to the change in position.

And this dizziness started after a visit to the mountains. Has not gone away after return to lower elevation.

So.....ear problem or hypoperfusion in brain worsened by exercise at high elevations? Not vigorous exercise.

Before lyme, years before, I had an episode of this and it turned out to be an ear infection from swimming. Went away. This is not going away.
Posts: 8430 | From Not available | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
gatorade girl
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I can't stand for longeriods of time. Sometimes it gets worse when I stand too quickly. Sometimes I pass out and they are usually followed by a headache and or ringing in my ears. I also get nauseous and hot and sweaty.

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gatorade girl

"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain".
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runningshoe
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I have pots too. It sucks. I have had 5 months of lyme treatment (but have had pots for 3.5 years before dx with Lyme) and am no better - yet. What meds are helping you? I am on doxy and levaquin. Definitely check out potsplace.com.
Posts: 37 | From ma | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
   

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