posted
Kim- That sucks...I'm so sorry! most of us have had something, maybe not as bad, but something similar. Vent all you want, cry, wipe them dry, and realize no, you're not alone. Rest and take it easy on yourself.
Posts: 30 | From Maryland | Registered: Aug 2010
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I've been on rimfampin three times already-now I'm on IV 5 times a week. This stuff used to make me so sad and depressed, it was debilitating.
Are you taking any antidepressants? They really helped me while I was on rifampin. I'm on them all the time but when I'm on rifampin my doctor bumps me up by 10-20mg. this is the first time I don't have that overwhelming sadness feeling.
I can sypathize with the pain. I used to say it felt like I was hit with a truck. Pain everywhere and that awful mucky brain feeling.
It really should pass. Hang in there. Rifampin has always helped me. I've had bart for about 25 years (just found out 2 years ago) so I think my progress is great.
Rest if you can- and try and get something for your moods. Rifampin is notorious for causing severe mood disturbances. It's not you- it's the drug. It's always good to know
Hugs and prayers
Posts: 298 | From usa | Registered: Aug 2009
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IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
Oh Kim, I'm so sorry for all of the pain, both physical and emotional, that you are going thru right now.
It sounds like you could use some xanax or klonipin to go along with your celexa while you are on the rimfampin.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
Kim, you've been through so much this summer. Maybe your doc could adjust your Celexa or something. I understand.
I finally relented. When I took the 3 weeks off work, I saw a new Psych doc. I'm now on Lexapro & feel so much better! What a relief!
Don't give up!
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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IgG � Igenex Positive; CDC/NYS Negative with 31+; 39 (IND); 41++; 58+ Posts: 339 | From Tennessee | Registered: Jun 2010
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
You have been through so much, I hope the Rifampin helps you to regain some of your health. Bart is cruel in and of itself but throw in everything else you are dealing with, and you deserve a medal.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Kim, I'm so sorry to hear of your pains. Really.
If it's any consolation, after my 3rd week on Rifampin (the 1st time), I felt like the emotional black cloud lifted and I there I was, just like the old regular me!
My best friend said to me, "Wow, you're back. You are yourself again (after 5+ years)." Lightbulb moment! Hope it happens to you too!
It makes the emotional side of lyme treatment with Rifampin so much easier to deal with if you can see it as a dark path that leads to light! It's so worth it!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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For me, I started out taking 1 pill of Rifampin a day, then worked up to 2 pills a day (1 in the morning and 1 in the evening), then 2 pills at the same time.
I did not have the terrible aches/pains that I thought I would to be honest. Maybe you can try splitting up the dosage a little? You may see some relief.
Good luck.
Posts: 114 | From Atlanta, GA | Registered: May 2009
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quote:Originally posted by TN Kim: 17hens, I am hopeful for good things from Rifampin eventually! I do have one question that
I may have to get straight from my LLMD though. I learned on my last visit that when I was "pulsing"
the Flagyl, I was supposed to have stopped my other abx but didn't! Now the Flagyl was switched
to Tinidazole (due to all my neuro issues) but I didn't ask if I was also to stop the Rifampin when
pulsing the Tini or just the other abx. Anyone happen to know?
Thank you 17hens also for your encouragement!!!
Kim
I just received my answer from my LLMD on pulsing. He did say to stop all my abx (Ceftin, Doryx and Rifampin) and take the Tinidazole ONLY for 3 weeks then alternate on that schedule.
So, I am glad that I will get a break from the Rifampin!!!
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![[Frown]](frown.gif)
Dang, here come the waterworks again!
![[Wink]](wink.gif)
I don't have a current RX for the Xanax anyway so![[Smile]](smile.gif)
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