posted
6 weeks ago I had a cold (stuffy nose, no fever for just a couple days) and went on a plane. I felt my head was about to burst. On the way back, no issues. However, about 1 week after that, I got intense pain in my sinuses (no sinus infection and CT scan showed no sinus issues) followed by unrelenting ear fullness and tension headaches. The ear fullness is improving with chiropractic care, however, I have an almost constant feeling of brain fog/whooziness and tension like headaches. I already have rheumatoid arthritis (and have for 25+ years) and responded well to medications. Unfortunately, I've been on prednisone for about a year due to breastfeeding (ranging from 5-7.5 mg/day). I've also had an MRI showing nothing. Then I had a lyme test - negative ELISA and western blot was negative IgG's but 2 positive IgM's - 23 and 41. I'm pretty sure this is lyme because of the acute onset on my headaches but I really haven't had a noticeable fever in as long as I can remember. I should also mention I received significant blood transfusions while I was pregnant 18 months ago. One other thing to mention is that I've never felt significantly tired even with a baby, working FT and getting 4-5 hours of sleep for months at one point (although my ID dr thought that prednisone could have been giving me a boost). Anybody with any thoughts? I'm kind of freaking out about my prednsione use as well but I can't quit cold turkey since its been almost a year.
Posts: 7 | From Stamford, CT | Registered: Sep 2010
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Mom it sure sounds like Borreliosis. And probably not all you have.
I believe RA is Lyme. In fact 1/1000 kids are diagnosed every yr. in the US with IJA. At least they got the name right-Idiopathic
I certainly would see a LLMD to help you at this point. And you may want to find a pediatric LLMD also. It could mean the difference between Autism and normal.
No you cannot quit cold turkey and you need the LLMD to help you deal with these issues.
They may want to put you on antibiotics for several months while weening you off the steroids and then retest to see if you get a better response on the test...Only a LLMD will do this for you.
Many can make a clinical diagnosis by other tests that you can be assured you have Lyme.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Pinelady has good advice.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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