my 10 year old daughter got diagnosed with Lyme disease last week and is on Doxycicline for 3 weeks. When I asked her pediatrician about testing for coinfections, he looked at me like I spoke alien. I was not prepared to inform him and discuss this with him, because I thought he would not even test for Lyme and I would have to fight for treatment, since my daughter's rash was not typical and we had not seen that stupid tick anyway. I have seen a kid completely fall apart due to later diagnosed Lyme and so of course this is all makes us very nervous.
Another friend dealing with Lyme suggested a Lyme literate doctor, but the appointment is 4 weeks away and also not covered by insurance. I have asked on the doc search forum as well.
What I am looking for is some advice or opinions as to what else we can do at this point? I don't want to find out in a month or two that there would have been very good things we could have done, but the window closed, esp. regarding supplements, nutrition, independent lab tests or whatever people can think of.
So, anybody out there with advice?
Thanks, ~ majesticmoose
Posts: 3 | From Shrewsbury MA | Registered: Sep 2010
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posted
Dr B suggest 4-6 weeks of orals antibiotics at high doses because this is when lyme can be cured easier...
Posts: 747 | From Utah | Registered: Apr 2010
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
Hi MM:
I would suggest you do a 6 week course of doxy in accordance with Dr. B's guidelines. The spirochete is only killed as it reproduces and if the 3 weeks misses some you can have issues down the road.
This should help with co infections as well, BART and ELRIC, not sure of BABS or some of the other parasites which a tick can transmit.
Our 10 year old daughter has BABS & Lyme and lets just say its not an easy time.
I doubt anyone would treat BABS this early. I also suggest you take pictures of the rash.
The extra 3 weeks on Doxy with sun avoidance, pro biotics, lemon water, etc are a small price to pay.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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my 10 year old daughter got diagnosed with Lyme disease last week and is on Doxycicline for 3 weeks. When I asked her pediatrician about testing for coinfections, he looked at me like I spoke alien. I was not prepared to inform him and discuss this with him, because I thought he would not even test for Lyme and I would have to fight for treatment, since my daughter's rash was not typical and we had not seen that stupid tick anyway. I have seen a kid completely fall apart due to later diagnosed Lyme and so of course this is all makes us very nervous.
Another friend dealing with Lyme suggested a Lyme literate doctor, but the appointment is 4 weeks away and also not covered by insurance. I have asked on the doc search forum as well.
What I am looking for is some advice or opinions as to what else we can do at this point? I don't want to find out in a month or two that there would have been very good things we could have done, but the window closed, esp. regarding supplements, nutrition, independent lab tests or whatever people can think of.
So, anybody out there with advice?
Thanks, ~ majesticmoose
-------------------- "Strength does not come from physical capacity. It comes from an indomitable will" - Gandhi IGeneX results - POSITIVE Bartonella and Babesia (Babesia worst of all) 18+ 23-25 IND 30+ 39 IND 41+ 58+ 83-93++ Posts: 54 | From columbus indiana | Registered: Aug 2010
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You are on the right track getting a LLMD. Also make sure that the LLMD uses IGenex lab in California to get the best results. I did not know anything until I came upon this site.
STAY AWAY FROM SUGAR- SUGAR IS THE ENEMY - Lyme feeds on it and just being off it has made me feel better. Also watch carbs have her not eat breads, flours, noodles pretty much anything white and starchy. And keep her on antibiotics. What I know now is these things have a 4 week cycle and you have to kill them when they are multiplying. They also go into a cyst form to fight the antibiotics so I am really glad you are taking her to a LLMD because there is meds for the cyst form too. I just don't know what it would be for her age.
I have had Lyme Disease for 31 years and had no idea until just recently after being diagnosed with Multiple Sclerosis. Now I find out that my children may have gotton it from me in utero. I will keep you in my prayers and if you want help a Lymetoo, a person on here helped me. Without her I wouldn't be starting treatment, I would still be taking steroids which is the worse thing for "lymies". Good Luck and take care
-------------------- "Strength does not come from physical capacity. It comes from an indomitable will" - Gandhi IGeneX results - POSITIVE Bartonella and Babesia (Babesia worst of all) 18+ 23-25 IND 30+ 39 IND 41+ 58+ 83-93++ Posts: 54 | From columbus indiana | Registered: Aug 2010
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