posted
Does anyone else have an impossible time getting out of bed? I don't know if it is my depression of the Lyme Disease. I sometimes will sleep 15 hours at a time. I just can't get out of bed. Does anyone else feel this?
Posts: 4 | From Overland Park, KS | Registered: Sep 2010
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posted
I think there have been some posts about this before...
This is my #ONE complaint! When I am having a flair it is AWFUL. When I am doing better it is still bad.
I think I am very different than most. I am "ok" during the days but my nights and mornings can be horrible. If I'm in a bad flare I'll sweat at night, be feverish, ache all over etc. Waking up is like coming out of a coma. I feel flu like, my mouth has a poison taste in it, I often have terrible headaches, dizziness upon rising, etc.... just absolutely rotten horrible feeling! Feels like a hangover......but I didn't even drink!
Once I'm up, have some coffee and sit for anywhere from 30 min to an hour...I can function. Then later in the day I'm even pretty normal...other than the terrible fatigue.
Wish someone could tell me why it is so bad in the mornings and what to do about it.
I will say that from March to Aug the abx was working pretty well and I was actually getting up ok without that horrible "coming out of a coma" feeling.......but now I'm back in a flare....and I'm still on the abx. Go figure!
-------------------- TxLymie IgG-Negative IgM - Postive bands 23 and 41
Other dx: 2000: Endometriosis 2009: Chronic EBV, Mycoplasma infection, HHV6, H.pylori Posts: 297 | From Houston | Registered: Jun 2009
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I hear ya. I'm wondering if my problem might be hormonal in addition to the other stuff, depression, Lyme, CFS. I do experience the sweating and headaches and cannot sleep. I sleep best during the day...go figure. Actually, getting up and showering is like trying to move a mountain. I am not functioning at all right now.
Posts: 4 | From Overland Park, KS | Registered: Sep 2010
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Silk and TxLymie, I've used the exact same words to describe my fatigue upon waking! The "5,000 lb weight on my body" and the "terrible hangover without drinking". However, if I can sleep 12 hrs uninterrupted, those feeling are much reduced when getting up. I get to sleep in like that about 3 times per week. Most days, I'm up at 6:45 a.m. to take my daughter to school. When I get home at 8:45, I eat breakfast and go back to bed for 3-4 hours. Then I have about 2 hours to eat lunch, shower and dress before I pick up my daughter at school. It's not much of a life.
Silk, I'm sorry you're having such a hard time right now. I hope that you get some sort of relief soon.
Kim
-------------------- Misdiagnosed with CFS for 7 yrs. Diagnosed by LLMD in 2009. Aggressive treatment for 3 years with minimum improvement. Posts: 120 | From FL | Registered: Jun 2009
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Dear KimDC, I also wake at 6:30a.m. and get my son off to the school bus. Sometimes, I'll stay up for a couple of hours then go back to bed until he gets home at 3:00 but a lot of the times I go right back to bed. And showering is a luxury...I know gross, I just have no energy to do even the basic things. My life sucks right now.
My Doc just put me on an oral Cefpodoxime 200mg 2x's a day for a month and I'm wondering if I'm herxing?
Thanks so much for your note.
Debbie
Posts: 4 | From Overland Park, KS | Registered: Sep 2010
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