posted
Hi there, Does anyone know the connection? I don't see this mentioned much on the board but maybe not everyone gets this?
Can't figure out what a bug and being thirsty have in common. Anyone?? Thanks!
Posts: 182 | From hills and valleys | Registered: Jan 2009
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posted
Hi Lymetoo--so how is this fixed? I've already seen an endocrinologist and they didn't find anything wrong! Negative for diabetes.
Posts: 182 | From hills and valleys | Registered: Jan 2009
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posted
My lyme Dr. explained this to me. There is something in the brain that regulates thirst and having to urinate - the hypothalamus gland.
Definition: The hypothalamus is responsible for certain metabolic processes and other activities of the autonomic nervous system. It synthesizes and secretes certain neurohormones, often called hypothalamic-releasing hormones, and these in turn stimulate or inhibit the secretion of pituitary hormones. The hypothalamus controls body temperature, hunger, thirst,[1] fatigue, and circadian cycles.
I wasn't sleeping well b/c I was having to get up to go to the bathroom almost 6 x's a night. I am 34 - not exactly normal. He said lyme loves this area of the brain and thirst and abnormal water elimination is very common, along with poor temp control, fatigue, etc.
Desmopressin is the drug he prescribed for me. It helps regulate the hormone that controls thirst and water elimination. I chose not to take it because I started sleeping better...and I kind of shy away from prescription meds in general. But, if you are having a really hard time with constant thirst, you may want to ask your LLMD about this. I do not have diabetes either. He said it will correct itself as we treat the infection.
About the drug:
Desmopressin is used to control the symptoms of a certain type of diabetes insipidus ('water diabetes'; condition in which the body produces an abnormally large amount of urine). Desmopressin is also used to control excessive thirst and the passage of an abnormally large amount of urine that may occur after a head injury or after certain types of surgery. Desmopressin is also used to control bed-wetting. Desmopressin is in a class of medications called hormones. It works by replacing vasopressin, a hormone that is normally produced in the body to help balance the amount of water and salt.
Posts: 618 | From NC | Registered: Oct 2009
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blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
I agree with Lymetoo. I had this bad before being diagnosed. I would drink about 100oz of water a day and was still thirsty. It is gone now with lyme treatment.
Posts: 1104 | From N.California | Registered: Jan 2008
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posted
Thanks for the info, jwall. I know I read all about that but didnt' have the info available here.. ( and no working brain, either )
I believe my mother had Lyme and she would be thirsty all the time. She also would sometimes get up in the night and eliminate tons of fluid. Her doctor had no answer for her.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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posted
Yes, thank you everyone, I thought my endocrinologist would check all this but just ignored my comments. Interesting info.
Posts: 182 | From hills and valleys | Registered: Jan 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Be sure your endocrinologist is LL. A regular endocrinologist would not know what to make of this, or much else that is so very different in a lyme patient as opposed to one without lyme.
I've seen several references to those with lyme taking their water bottles with them. I go nowhere without mine, that's for sure.
I pass out if I don't get water when I need it. About every ten minutes.
In addition to the HPA / adrenal and kidney hormone imbalances, a lot has to do the decreased blood volume with NMH (neurally mediated hypotension), very common with lyme. NMH discussed here:
Topic: To everyone with cardiac symptoms please read ! -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- This book is specific to lyme and other chronic stealth infections. The author discusses the endocrine connection and effects of STRESS on a person with such infections. You can read customer reviews and look inside the book at this link to its page at Amazon. ----------------
The Potbelly Syndrome: How Common Germs Cause Obesity, Diabetes, And Heart Disease (Paperback) - 2005
by Russell Farris and Per Marin, MD, PhD
==================
Remember that lyme really messes up the HPA axis (Hypothalamus/pituitary/adrenal network). The pituitary has much to do with weight/growth. Mess up any part of the endocrine system and other parts suffer, too.
See page 4 where Dr. Burrascano describes a bit about the considerations of the dysfunction with the HYPOTHALAMIC-PITUITARY AXIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Great information about treatments options and support measures, including those to help adrenal/endocrine function:
~ James L. Wilson, ND, DC, PhD, Johnathan V. Wright, MD
About $10. And qualifies for free shipping with a total $25. Purchase at Amazon -
Posts: 48021 | From Tree House | Registered: Jul 2007
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2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
My son has thirst issues.
I may be alone in this belief, but I feel it is Bart.
I feel Bart does a lot of cognitive damage that is believed to be lyme. I despise the Worm, but maybe we are talking about more then one infection.
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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posted
Hi Keebler, 2roads--thanks for the informative links and information. Haven't treated bart yet, it is all so complicated!
Posts: 182 | From hills and valleys | Registered: Jan 2009
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