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»	LymeNet Flash » Questions and Discussion » Medical Questions » How is it possible?

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Author

Topic: How is it possible?

jdkpa
Junior Member
Member # 28236

posted

Besides the fact that the tests are obviously lousy...

I am wondering how my WB test in 2009 shows that I tested positive for 4 out of 10 bands - and then in 2010 my WB showed positive for 7 out of 10 bands...

My ELISA was 3.60 in 2009 and now it is 2.30.

This makes no sense to me...

Oh and I was on 2 30 day courses of DOXY in between those two tests...

--------------------
If you stand for nothing - you fall for anything.

Posts: 4 | From Pennsylvania | Registered: Sep 2010 | IP: Logged |

sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270

posted

The test change because our bodies are not always making antibodies. There is a long explanation for that.

The ELISA is an absolute waste of money. Not worth worrying over or paying for.

Just try and remember that LD is a "clinical" diagnosis!

Posts: 4035 | From Mississippi | Registered: Jul 2008 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

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Two 30-day courses of a single antibiotic will not even touch lyme, especially if other tick-borne infections are involved that need totally different medicines.

Doxy also does not treat the cyst or other forms of the Borrelia spirochete.

You don't need more lyme tests. You need a Lyme Literate MD. And you may need to be assessed for other TBD (tick-borne disease).

I see that you have posted in "Seeking a Doctor"

Good luck.
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Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

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www.ilads.org

ILADS - be sure to read all the articles in "Articles and Presentions" Get the DVDs of ILADS of past seminars.

=================

http://www.lymediseaseassociation.org/

Lyme Disease ASSOCIATION

- In the menu to the left of their home page, you can order DVDs of past ILADS seminars. You might also be able to borrow some from your local lyme support group.

This are invaluable to understanding how these infections work. And, none of this is taught in medical schools. None.

-================

http://cassia.org/checklist.htm

Symptom checklist for lyme.

=================

http://cassia.org/essay.htm

When to Suspect Lyme - by John D. Bleiweiss, M.D.

=================

http://www.lymeinfo.net/lymefiles.html

LYME DISEASE MEDICAL LITERATURE SUMMARIES

=================

http://www.ilads.org/lyme_research/lyme_articles4.html

Lyme Disease: Two Standards of Care

by Lorraine Johnson, JD (revised 2005)

=========================

This explains WHY you need an ILADS doctor:

www.clinicaladvisor.com/Controversy-continues-to-fuel-the-Lyme-War/article/117160/

From the May 2007 issue of Clinical Advisor

CONTROVERSY CONTINUES TO FUEL THE "LYME WAR"

======================

www.jneuroinflammation.com/content/5/1/40

http://www.jneuroinflammation.com/content/5/1/40/abstract

Journal of Neuroinflammation 2008, 5:40

25 September, 2008

Persisting atypical and cystic forms of Borrelia burgdorferi and local inflammation in Lyme neuroborreliosis

======================

http://www.underourskin.com

Documentary: UNDER OUR SKIN (you can purchase for $35 at the site or see if you local lyme support group has a copy to lend.)

========================

http://tinyurl.com/5crsjv

CURE UNKNOWN: Inside the Lyme Epidemic (2008) - by Pamela Weintraub

This details what an entire family went through. Having this knowledge of their journey will help others to get better, faster treatment.

http://www.cureunknown.com

============================

It is best to see a LLMD in person first for a physical exam, history and symptom assessment. Then the LLMD can guide you to the best tests.

www.canlyme.com/seronegreasons.html

(27) REASONS WHY A SERONEGATIVE TEST RESULT MIGHT OCCUR

============================

TESTING

You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. One of the top labs is:

www.igenex.com

IGENEX

-----
There are a couple other good labs for certain tests: Fry; Clognen; Focus. Your LLMD will know.

================================

VERY important to read - even BEFORE testing:

Dr C's Western Blot explanation is discussed here:

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042077

=================================

In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=069911#000000

TIMACA #6911 posted 03 August, 2008

I would encourage EVERY person who has received a lyme diagnosis to get the following tests.

- at link.

===============================

Find your local SUPPORT GROUP for help in finding a doctor, etc.

www.lymenet.org/SupportGroups/UnitedStates

===================================

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=020605

MAKING THE MOST OF YOUR LLMD VISIT
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Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

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In addition to basics of Rx treatment, Basic Self-Care guidance here:
------------------

http://www.lymepa.org/html/dr__j__burrascano_september_20_0.html

Burrascano's Powerpoint SLIDE presentation 9-20-08

------------
http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Advanced Topics in Lyme Disease (Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses

Dr. Burrascano's Treatment Guidelines (2008) - 37 pages

------------
As important as any supplements, sections regarding self-care:

Go to page 27 for SUPPORTIVE THERAPY & the CERTAIN ABSOLUTE RULES

and also pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation.

----------------------
This is included in Burrascano's Guidelines, but you may want to be able to refer to it separately, too:

http://www.lymepa.org/Nutritional_Supplements.pdf

** Nutritional Supplements in Disseminated Lyme Disease **

J.J. Burrascano, Jr., MD (2008) - Four pages

==============================

It's very important to have this book as a reference tool for self-care and support measures. It answers so many questions in detail that is impossible here on the forum.

http://tinyurl.com/6lq3pb (through Amazon)

THE LYME DISEASE SOLUTION (2008)- by KS, MD

You can read more about it here and see customer reviews.

Web site: www.lymedoctor.com
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Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

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www.lymedisease.org/lyme101/coinfections/bartonella.htm

BARTONELLA

Symptoms, Treatment and Prevention

Bartonella; Comprehensive overview covers symptoms, treatment, and preventions of this tick-borne illness.

=======================

www.lymeinfo.net/bartonella.html

BARTONELLA

Patients with a history of Lyme Disease who have incomplete resolution of symptoms should be evaluated for Bartonella infections. ...

==========================

www.lymedisease.org/lyme101/coinfections/babesia.html

BABESIA - Symptoms, Treatment and Diagnosis

=================================

www.lymediseaseresource.com/Babesia.htm

BABESIA

Babesia symptoms . . . listlessness, slow thinking, high fevers or unexplained fevers, . . .

===========================

http://lymemd.blogspot.com/

LymeMD Blog: 3/4 of the way down: Wednesday, March 3, 2010

BABESIA, Babesiosis, blood parasites, malaria like organisms, piroplasms-protozoa: all refer to the same Lyme associated co-infection
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Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

onbam
Unregistered

posted

The technology to reliably diagnose Lyme exists; it's just that the really good tests--Q-RiBb, darkfield microscopy, PCR, and flagellin-based polypeptides have been withheld from us.

lymecryme.com goes into more detail on this.

IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Don't worry about it. Your body is making more antibodies and that will make the test show more bands.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

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