posted
Someone please tell me this happens to them!
This is the third time I've had severe pain in my hamstring area, where I cannot straighten my legs or lie down unless I am THOROUGHLY medicated, with medicines like Vicodin or Fioricet. Fioricet helps the most, out of the six different things I've tried.
I have four week cycles (Lyme?) that have become two week cycles (currently trying to see if this is Lyme or Mycoplasma pneumoniae), and all three times this has happened:
Severe headache for a couple days,
higher than normal fever (usually 99.2 spikes, but during this time from 99.7-100.1 fever),
followed by five days worth of SEVERE pain in the hamstrings as if I had stretched them.
I can't figure it out, I hear of everyone having leg pain in other areas (front of thigh, shins, joints, etc.) but what about this???
Thank you so much!
little olive
Posts: 512 | From USA | Registered: Sep 2010
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posted
I met someone with very similar pains-- left arm, under arm tingling and pain, and pain in the left leg in the back of the thigh-- a deep feeling muscle pain-- more at night.
I think she said it was Bart, but I'm not sure.
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Dr S says this is Babs.
abesiosis
As with other co-infections, there is a lot of overlap of symptoms between Lyme disease and Babesiosis. An accumulation of the following signs and symptoms probably warrant testing and/or treatment of Babesiosis:
___Chills
___Fatigue and often excessive sleepiness
___High fever at onset of illness
___Night sweats that are often drenching and profuse
___Severe muscle pains, especially the large muscles of the legs (quads, buttocks, etc.)
___Neurological symptoms often described as "dizzy, tipsy, and spaciness," similar to a sensation of "floating" or "walking off the top of a mountain onto a cloud"
___Depression
___Episodes of breathlessness, "air hunger", and/or cough
___Decreased appetite and/or nausea
___Spleen and/or liver enlargement
___Abnormal labs (low white blood count, low platelet counts, mild elevation of liver enzymes, and elevated sed rate)
___Headaches (migraine-like, persistent, and especially involving the back of the head and upper neck areas)
___Joint pain (more common with Lyme and Bartonella)
___anxiety/panic (more common with Bartonella)
___Lymph gland swelling (more common with Bartonella and Lyme)
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
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posted
The muscle pain of the thighs, hamstrings is usually babs. Are you treating babs?
Posts: 490 | From TX- Go Cowboys! | Registered: Aug 2009
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posted
Take a lot of magnesium glycinate...it helps more than any thing else.
Posts: 871 | From orange county, ca. | Registered: Jan 2006
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posted
I do have bartonella... Not likely to have babs... Do take magnesium... Such an annoying symptom, to say the least!
Posts: 512 | From USA | Registered: Sep 2010
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posted
I have severe pain in my legs but it feels more like nerve pain. I also get the headaches for a few days and then the leg pain. Or both at the same time.
I am not sure if I have coinfections... tested negative at Quest but am waiting to see an LLMD (just moved) and then will see about IGENEX testing or even clinical diagnoses for the coinfections.
Good luck. Sorry about your pain. Epsom salts OCCASIONALLY helps me.. but ya.. pain meds far exceeds epsom salts when you are really down and out.
Posts: 341 | From NY/FL | Registered: Apr 2010
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posted
Hi renny, thank you for your reply, I found it extrememly interesting that you also noticed this same pattern.
I'd recommend being tested for coinfections by LabCorp. Not IGENEX, not even Quest, but LabCorp seems to be the most reliable from what I've read...of course be aware that even the most blatant coinfection can still refuse to show up, especially bartonella.
little olive
Posts: 512 | From USA | Registered: Sep 2010
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posted
Wow really, Labcorp? I didn't realize. I have one about two minutes from my house in FL. Sounds good, thanks for the advice.
Posts: 341 | From NY/FL | Registered: Apr 2010
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posted
Hm... Please do some searching in here with Labcorp verses Igenex.
Igenex really is the best when it comes to Lyme and all the co infections.
A good LLMD that is with ILADS will know which lab to use.
Labcorp and Quest will most likely not be on their list.
-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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posted
Well, personally, I'm basing my statement on what I have read from the boards. While most LLMDs prefer IGeneX, I've read where the people on the board said it was actually LabCorp who turned up their coinfections.
This might be because LabCorp tests for more KINDS of coinfections, or a simple case of timing, but I have read where even a simple bartonella test didn't yield from IGeniX while it did from LabCorp. I didn't just throw that information out for no reason
Depending on what types of infections you're looking for, would help determine which lab your LLMD might want to use. For instance, IGenex is of no help in finding bartonella quintana, or mycoplasma infections, which is really important considering I have them both!
If anyone else can shed light on the thigh pain thing, I'd appreciated it!
little olive
Posts: 512 | From USA | Registered: Sep 2010
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posted
Little Olive... we are all here to share kindly with each other.
If you do searches for the leg pain, or muscle pain, you will find lots in here.
Some will say it's a herx/die off... my LLMD said it was also. When I backed off my abx, it did get better. Thought is if you're killing it too fast too much... the herx is worse.
You didn't state if you are on ABX or not....
And a key thing in here is that we all have different opinions, and different reactions to the disease AND to the drugs we take.
My labs with quest, labcorp and the small ones always have come back negative. My Fry lab and Ingenex have been positive. I've seen two top LLMD's in a course of 10yrs.
Specialty labs for lyme are always the best.
Hope you can figure out your pain. Most of us have had it over time. Like anything with Lyme and Comp... everything comes and goes. Again, search for the pain thing and you'll find many answers as for what they think it's from and how they all have treated it. Unless you get some answers here that are what you are looking for.
Best wishes.
-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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posted
I am not on antibitoics, in fact all of these episodes have occured while NOT on antibiotics. That's probably an important piece of information I forgot to add! I had to pause and do a yeast-eradication for a few MONTHS, but I'll be back on antibiotics hopefully within a few weeks.
We may have to agree to disagree. I do agree that IGeneX may be best for what it tests for, but sadly, there are several infections and strains of those infections that IGeneX does not test for, and therefore it cannot be expected to find what it doesn't look for, you know? I really feel that's where the differences lie.
I just tried to do another search per your suggestion--all I found last time was general "thigh" pain, and this is very specifically a "back of the thigh" issue--and was surprised to see things that fit, and that most people think it's a bartonella issue!
I do know that my bartonella flares the worst when it's close to a Lyme flare (or Mycoplasma flare; again, we're still trying to figure out which one) so this could be the answer. I will search my symptom charts and see if it correlates. Thanks again for the suggestions
little olive
Posts: 512 | From USA | Registered: Sep 2010
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posted
Hi.....I'm new to this group, just need to talk and also feel so much compassion for all of you who are going through these issues. I woke up one night 3 months ago with terrible pain and spasms in my right leg. It went down from my inner thigh area all the way to my ankle. Before that I was totally fine. I've had ultrasounds, x-rays, gyno tests, seen a neurologist, orthopedic doctor and no one knows what's wrong with me. I'm walking with a cane now and since I was born with a dislocated hip on my left side it's hard for the dr.s to tell what's wrong with me. I always walked with a limp but never had pain, was very active and am going crazy now because I'm so different. The neuro dr. finally agreed to put me on Doxycycline to see if it's Lyme even though the tests keep coming back negative. I also have frequent urination, mood swings and depression. How do you ever know it's really Lyme if you can't get a positive?? Little Olive yes I've had the hamstring pain too but no headache or fever. My pain and weakness almost feel like nerves and not bone pain, it's hard to explain. But since I've been on the Doxy I've had extreme dizziness too. Anyone know about Herx and how long before I can expect to feel any better if it is Lyme? Thanks, Skippy
Posts: 13 | From Orange CT | Registered: Oct 2010
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Most people do test negative; the ones who show infection with a basic Western Blot test are the lucky ones. You can "know" it's really Lyme Disease if you get tested by IGeneX. They mail you a test kit, you take it to your doctor, then after he signs off on it you get your blood drawn and mail it back to the lab via a pre-packaged reply form. My other attempts came back negative on "normal" tests as well, so I'm doing the IGeneX thing to see what's really there.
You'll also know you have an infection present if the doxycycline makes you feel much worse. Your dizziness is herxing (was my worst symptom on Doxy), it results from lots of bacteria dying at once, and it won't happen if you don't have anything that needs to be killed. But you obviously do.
This section of the forums is a great place to ask medical questions for symptoms and things, and there is also an equally-active General Support section for non-medical things, and a Seeking a Doctor forum if you want to find a Lyme-literate medical doctor (LLMD) in your area.
So if you have other questions about symptoms and testing, please make a post to the main partof the forum, there are lots of people who can help answer whatever questions you have
little olive
Posts: 512 | From USA | Registered: Sep 2010
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Interesting about Labcor. I tested negative at IGeneX but I do have bartonella. Treating it releaved my muscle pain. I don't know if it is exactly the same as what you have but it was like cramping in the backs of my legs as well as my inner thighs, hip joint, back and the usual placed like toes. It could come on suddenly making me scream or just linger in a mild contraction for weeks.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Hi and thanks for your responses and info! I really appreciate it and it is very helpful. My friend had told me about IGeneX so that's what I'll have to do next. And I'm starting to believe that I have herxing because the pain is so much worse now and I have the dizziness. This a.m. after taking my pill my right ear started ringing so bad too. Geez what other symptoms will I get next? Lol! Trying to keep the spirits up but it's very difficult. My boyfriend had to vacuum for me today, it's so hard to do anything. Thanks again for the info on the other forums too.
Posts: 13 | From Orange CT | Registered: Oct 2010
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posted
Neff, it feels EXACTLY as if I have pulled a muscle, or like, you know when you're stretching and maybe trying to touch your toes, and you bend far enough to where the muscles burn? It feels like that, but it DOESN'T STOP and goes on for about 4-5 days. Agonizing. Is that a cramp? I'm not even sure, I never have a problem with cramps so I have nothing to compare it to. It can extend upwards or downwards but it's usually the back of my thighs.
Thankfully I'm not having it right now
Posts: 512 | From USA | Registered: Sep 2010
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