posted
Is there REALLY such a thing as INTERNAL SCLERODERMA? I had no idea!
My GI doctor is thinking I may have this at the "proximal duodenal sweep." Also some other issue that says "dystophic calcification of some type of sacrouterine ligaments." I'm not sure if that's anything or not............
This was found during a CT of my abdomen & pelvis, after my bizarre "bleeding bladder." I had a complete hysterectomy in '02. Also, they recently tested me for bladder & cervical cancer, which were NEG.!!!!!
My GI wants me to have an endoscopy with a a biopsy done of this distended duodenal sweep thing. I had my gallbladder removed in '86.
Had a modified barium swallow done 2 days ago. They let me watch the cd they recorded and it looked pretty good they said. They think they problem is further down........
Things tend to get "stuck" or "hang out" awhile right around the bottom of my throat. I can swallow okay (even thought I have choking spells), but things stay put for a little while before they pass down into my upper chest area and on down.
Have y'all heard of this "internal scleroderma"? I haven't. I thought it primarily affected your OUTSIDE harding/thickening of the skin.
I DO have major Raynaud's which gets extremely horrible in the winter, although I've got it all year long. It comes & goes in spurts.
Sometimes, it's unbearable. Right now, it's beautiful outside........and for Houston, it's unreal. It's in the high 80's and sunny, but guess what? My Raynaud's is horrible with my toes and either one hand or the other.
Please give me any insight on this "internal scleroderma" if you are able. I've looked into it on the internet, but it's so confusing.........
Thanks, terri3boys
Posts: 268 | From Texas | Registered: Aug 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- If you ever had a duodenal ulcer, this could be scarring from the ulcer's infection - or internal scarring from another infection.
Fibrosis is a less frightening word and infection can cause fibrosis. There are things that can help.
Your LLMD may be able to offer additional insight into the various possibilities or connections.
Raynauld's often also goes along with lyme.
While lyme (or other infections) can cause internal scarring of organs, the autoimmune connection is also something that your LLMD should address so they look at it from all angles. The question: is this infection-caused &/or autoimmune-caused? Or both?
Your LLMD is best to ponder the question of cause & effect - and offer suggestions. Are there other chronic tick-borne or stealth infections that could be causing this? It's an important consideration.
Your LLMD may know of a specialist who would suit your needs.
* "Visceral Manipulation" - For practical relief, you might also find someone trained in the approach by Upledger Institute (which also teaches cranial-sacral therapy).
* "Myofascial release" might also help release the pull by scar tissue at the place of origin.
* Specific nutritional supplements could be addressed by your LLMD - or by a LL ND.
Good luck.
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The last post in this thread lists links for body work techniques mentioned above:
Treating Scleroderma with Chinese Herbs - by S Dharmananda
Scleroderma is an autoimmune disease where production of antibodies against certain connective tissues produces fibrosis with a thickening and tightening ...
Raynaud's Disease: Chinese Medical Perspective - by S Dharmananda
Raynaud's phenomenon is mainly mentioned in modern Chinese literature as a symptom experienced by patients with scleroderma. Scleroderma is caused by an ...
Raynaud's disease is mainly mentioned in Chinese literature as secondary to scleroderma, a disease which may have similar underlying imbalances from the ...
Herbs used to relieve skin hardening in scleroderma include tang-kuei, red peony , and salvia (15). These same herbs were commonly applied to treatment of ... -
Posts: 48021 | From Tree House | Registered: Jul 2007
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Sounds like it could be Bells Palsy of the gut which can cause swallowing problems along with gastroparesis (slow peristalsis)
Dr. Virginia Sherr wrote an excellent srticle on this. You can type her name into the search bar at the top or just google her name on line.
Parasites can be an underlying problem as well since they reproduce and make their home in the small intestine.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Gael's addition of parasites as one possible cause speaks volumes - and it's a very important consideration. Here' the link to that excellent article she suggests: -------------------
The Human Side of Lyme -
Posts: 48021 | From Tree House | Registered: Jul 2007
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Bump
Interesting gael & Keebler
How would yall go after bells palsy of the gut? I'm convinced it's Bart more than Lyme
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
To treat the "bell's palsy of the gut," one must treat the underlying infections (i.e., Lyme/coinfections), and then clear up any residual inflammation or other issues.
Yes, I've heard of "Internal Scleroderma" ~ spoke with someone about it within the last few weeks, actually. I think it could well contribute to or be a big part of some people's GI Lyme symptoms (possibly even my own case, also). Anyway, the person I spoke with seemed to suggest that mycoplasma coinfection may play a role too.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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