posted
OK so the background is this I have been off abx for about a year now, my LLMD said I was in remission YAY!!!!!
I felt better for awhile but still never 100% but 85-90% Which wasn't bad considering.
So I celebrated by ignoring the docs maintenance plan and just stopping everything. This was stupid as I now know.
I recently havs started to feel crappy again not nearly as bad as I was but not great none the less so I called my LLMD and his assistant said start the maintenance plan he gave you give it a month and see how it goes call us if you feel crappy still after.
So I started it. The Plan was:
Super Artemsimin 150 mg (sp?) 3x day
Mesosilver 1 Tbsp 3x day
2 Magnesium Taurate 100mg once a day
Samento up to 15 drops a day
and COQ10 twice a day.
I started slow with the mesosilver doing one a day then up to two no biggie
I jumped right in with the artemisin
and I built up slow with the samento day 1 doing 2 drops, day 2-4 drops, increasing two drops a day until I got to 8, thats as far as I got.
I was on the train going home from work and the mother of all panic attacks hit I havent dealt with one fo these in awhile and it was bad I couldnt breathe both my arms and face went numb, heart racing, sweating etc.
and I couldnt even get off the train I had to sit and deal with it. So my question basically is does anyone know what might of caused it out of what I named above?
How do I get through the anxiety because now I'm on high alert at all times.
Should I go back on the regiment and do something different?
Does that mean lyme is still kicking my ass?
Thank you for all your replies in advance, sorry for the epic long saga :-)
posted
Ms. Geet, yes I'd say you are relapsing, and rather than just maintenance, I'd get back to hitting it hard. Anxiety preceded my total relapse by about two months. Could be lyme or one of the co-infections, bart or babs.
Posts: 43 | From Florida | Registered: Jun 2010
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
You can probably get it under control faster if you act quickly and aggressively. Bart causes anxiety. Have you ever treated it?
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
You might look into KPU for anxiety. There are threads on it here and I'll post a link to an article.
85% is not 100%. You should treat until symptom-free for at least two months. If the LLMD gives you natural protocols to complete the treatment, you need them if you haven't been symptom-free for a couple months.
My guess is herx from the samento.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
posted
I don't want to relapse!! Damn it :-) ok sorry I needed to get that out lol Nefferdun my LLMD tld me I have bart and I believe he treated it altough I dont know what in particular is used to treat it so I dont really know.
I spoke with my llmd's PA and she said I should start with the supplements again slowly adding 1 more every 2 or 3 days, If I want antibiotics she said she has a script for biaxin and plaquenil for me.
sixgoofykids- I have to agree when I increased the samento is when I started feeling whoa anxiety, should I increase slower then 2 drops a day in your opinion?
Bocalyme- Hitting it hard like abx right away???
Thanks guys I love my lyme family!! :-)
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
| IP: Logged |
posted
up for anyones additional feedback about treatment!
Thanks!
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
| IP: Logged |
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
You might need to increase at a slower rate, OR tolerate the herx .... my LLMD thought you should attack the bugs hard before they can hide .... other schools of thought are to ramp up. I knew someone who had to increase by half drops.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
posted
Thanks Six! I started with just the artemisin (sp?) and I had to stop again all together, I am getting crazy anxiety, increased dizziness and now I'm having what i think is air hunger.
I'm frustrated I dont know what to do now! I have a script for biaxin and plaquenil that my llmd gave me when I called saying I wasnt feeling good again.
She said first try supplements if not then do abx again. I dont know I;m frustrated and confused at which route to take.
Thanks again!
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic