posted
My neuro seemed surprised by this symptom, and I wonder if I've been explaining it well enough to my Lyme guy.
I went from jogging 7 or 8 miles a week to barely being able to get up the stairs in my house. This was not a gradual decline, it was inside of a week, max.
I'm good for the first few stairs (or, in his case, for the neuro exam). But the 4th or 5th one up, I feel like I'm dragging 200 extra pounds behind me.
Sometimes I have trouble opening doors - my arms get weak.
I'm not sure weakness is the right word? Like I said, my neuro told me I didn't have any muscle weakness - this is because doing that brief "push against my hand" test, I can do. But jog for a minute? I'm out.
I was in great shape before this.
Posts: 306 | From Brownsville, PA | Registered: Jul 2007
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Same thing here! Within one week, I went from completely active and healthy (or so I thought), jogging/exercising, to barely being able to walk. It was a rapid decline w/multiple neuro. symptoms.
I told the neuro. that my leg was weak. He told me to push my foot against his hand and I did and he said, "your leg is not weak." I KNOW when my leg is weak and it was weak. So frustrating. He cost me a lot of time when he told me to "never ask him about lyme disease again" if my Elisa test came back negative. Of course, it came back negative and so I stopped thinking I had lyme, even though I had been bitten by multiple ticks, and it cost me 18 months as I pursued other possible reasons for my rapid decline in health. I am so angry w/doctors (except my LLMD), but am trying to let it go.
I have arm weakness too. I call them floppy arms. I pretty much have overall weakness/shakey feeling, esp. while on antibiotics.
Hope you get stronger and stronger every day!
Posts: 618 | From NC | Registered: Oct 2009
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hi I had an EMG it is normal! when this first begun I had my right calf get weak the leg get weak then it turned to jello.I had lost my foot it dragged.Toes foot numb jerking of my legs like someone is biting me under my skin!You know Neruo runs with MS. Have the eye pain and lesions in brain and in T- spine. All are SLOWLY easing up. Some in T spine disapeared my mind is still foggy better but when I get tired I forget words say stupid things write poorly one day I couldn't think of (printer) as I looked right at it...Scary But tell me with all the antbiotics and IV Rocephin (WORKS GREAT) together it took time. My leg got stronger, YOU NEVER GET RID OF NERUOLOGICAL LYME! Trust me. You have flair ups I get flushing of the skin and now my shoulders hurt even my hip joint! Knee caps yes walking up stairs feel like 200 pounds on you! How about your feet? Does anyone get out of bed and feel like the bottom of their feet ACHE!
They just took away ALL the Health Insurances from my Dr. Think their putting the screws to Lyme Doctrs? Hm- dam shame he SAVED my life. I finally was diagnosed with encephalitis in the brain by a SPEC MRI (totally different then a MRI..Now don't you all think that would effect my optic nerve.I mean they are SO quick to say MS I realize I have a lot of symptons of that disease but why when they put me on steriods I thought I was going to die! I got worse and worse.
When I started Dox/Plaquinal/Zithormax in 6 weeks felt better but folks- I am on YEARS now. I am off my anti's for 7 months now but with stress I am having flair ups. So yes I get the weakness I feel when I walk that my back is tight my foot trips up. I blame this all on my back surgery and fusion. God if they would have caught BEFORE the surgery I had lyme it wouldn't have gone through my central nervous system like wild fire!
Now I hear root cancels are bad if you have lyme.And take out ANY mercury fillers.Lyme is SO misdiagnosed I went to Doctors since the early 90's they finally caught it threw Igenex Lab in CA in 2006.
Any advice? Holestic? I think Rocephin but then I need gullbladder out. Does anyone else have or had--this like me? MS/Lyme and these wide range of symptons? Thanks
-------------------- I feel like their's corruption with some Doctors about lyme disease Posts: 23 | From Westchester NY | Registered: Oct 2006
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