janice victorov
Frequent Contributor (1K+ posts)
Member # 22937
posted
Evening all.
What a horrible last day. I started with the joint pain in hands, headache. Thought I would die from it. Today worse. My back hurt.
I cried and thought this is horrible. I was able to work but when the end of the day came,,,was beat.
I don't know why the rif took so long to hit me. I started feeling something last week. This herx snuck up on me and omg,,,
Anyone else experieince this?
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Yes Janice. How long have you been taking it?
I was herxing somewhat while on Rifampin but it really kicked my butt at the end of the 2nd week. I almost ended up in the ER because I thought I was having a heart attack. Very high BP etc.
I will try it again soon but ramp up slowly. last time I started with 600 mg.
Posts: 2232 | From USA | Registered: Aug 2009
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janice victorov
Frequent Contributor (1K+ posts)
Member # 22937
posted
I have been on it just about three weeks. I ended up in the ER for the same reason. My heart was palpitating so much I thought it jump out of my chest. All tests were normal.
My chest was so flushed I couldn't believe it.
I feel somewhat human now. Just so tired I can't stay awake.
I know it's killing something but at what expense??
Sometimes can't tell if it's a herx or another co-infection acting up.
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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bcb1200
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posted
I'm on day 5. I've noticed a fare in symptoms, more than what I had on levaquin. I have more "spaciness", ear ringing, and I get flushing occasionally. I take 600mg in the am.
Hope it means its killing Bart
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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janice victorov
Frequent Contributor (1K+ posts)
Member # 22937
posted
Thanks all. I have heard great things of this drug as well.
Even through the bad herx I noticed my twitching is stopping and the internal buzzing is going away.\\Flushing? Me too. Just every few days but today my whole chest was flushed and no fever just my skin feeling warm.
I hope tomorrow is better. I have been drinking a lot of water and sleeping this evening.
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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posted
My daughter had the herx from hell from rifampin. She could not even tolerate an extremely low compounded dose.
Maybe this isn't the med for you?? Talk to your doc.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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posted
I spoke with Dr. S at vanderbilt(expert on chlamydia) his is a dr. and microbiologist. He told me never to pulse rifampin and also not to titrate. Start at the full dose for a week and if you can't handle it stop and try again in 6 months when your load is down. You don't want to play with rif because is hits so many bugs bart, whipple and tuberculosis just to name a few. Resistance is a big issue.
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lyme in Putnam
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Member # 11561
posted
I hope u feel better. If u can tolerate it, it supposed to be hitting Bart head on. I lasted 5 days, the first 2 at 600, then down to 300 for the last 3. Mentally hit me hard. Be well.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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bcb1200
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posted
I take 600mg / day. My Rx bottle says take 300mg 2x/day. I follow Dr. S's advice and take all 600mg in the am.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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janice victorov
Frequent Contributor (1K+ posts)
Member # 22937
posted
I heard on an empty stomach. Also, take the last dose in the evening one- two hours before bed.
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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nefferdun
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Member # 20157
posted
Another reason you do not pulse rifampin is taking breaks can cause you to have flu like side effects when you restart it. You have to take it as prescribed every day with no breaks.
I may restart it when I see the LLMD as bactrim has hit a plateau.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
rifampin is one of the more toxic abx's you need to detox big time while on it by any means !
drink lemon water, take a detox bath , detox max , and or milk thistle !
Posts: 294 | From sw chicago suburbs | Registered: Apr 2007
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Haley
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Member # 22008
posted
Also, keep in mind that there are people that are not having a herx but their body can't tolerate this medicine. So, be sure that you are indeed having a herx and not a reaction to this drug.
After only 2 weeks (600 mg) of this medicine (I took over a year ago) many of my symptoms subsided. That is why I have always wondered if this is the med for me. I'm just scared to take it after my last experience.
It also was difficult because my sleep meds didn't work and I was unable to sleep on this med.
Keep us posted.
Posts: 2232 | From USA | Registered: Aug 2009
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quote:Originally posted by Haley: Also, keep in mind that there are people that are not having a herx but their body can't tolerate this medicine. So, be sure that you are indeed having a herx and not a reaction to this drug.
So how does one know if it is a herx or a reaction? From what I have read at drug info
sites, the reactions seem pretty severe ... nausea, vomiting, high fever and joint swelling, etc.
I have depression, headache and since yesterday, body muscle aches and pains in my hands, wrists, knees, fingers and some more twitching.
The things I am experiencing are the same that I always experience when starting a new abx. So,
I am assuming that I am just herxing. Am I right? How can you know for sure? *confused*
posted
Rifampin made me puke sooooo much yesterday. It was so gross. I felt fine until about 40 minutes after I took it. I spent the rest f the day and night vomiting. Now today I am incredibly light-headed, dizzy.
Am I the only one with these symptoms??
-------------------- Bullsye rash: 1994, tx w/ ABT, Symptomatic:1999 Hospitalization: 2004 Equivocol results (specialy lab) resulting in chronic use of ABT, herbs, etc ever since. Severity of symptoms continue to worsen intermittingly. Posts: 140 | From maryland | Registered: Oct 2006
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I'm so sorry about your vomiting! YUCK! I couldn't handle that ... I'd have to stop ANY medicine that caused that!
I would think that you may be having a serious adverse reaction to it! Vomiting is one of the serious side effects listed!!! I'd get OFF of it and call your doctor!!!
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