posted
I don't think I spin nearly as severe as you describe. I get dizzy upon getting out of bed, along with shortness of breath. I also have suspected Bart with no positive results proving that.
I hope you find someone that has answers to help you.
posted
Thank you fyrecracker. Yes I'm used to a fair amount of dizziness
(neurological disease will do that, afterall) but lately it's been
very extreme! I'm surviving off of ginger tea, which helps a lot,
but I'd feel better knowing someone else has this (as strange as
that feels to type)
Bart does have a nasty habit of NOT showing up on tests, grr
Posts: 512 | From USA | Registered: Sep 2010
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I had this in the beginning of my illness. I believe it is related to the inner ear.
Kebbler knows a lot about this and will probably respond to your thread at some point.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Sorry, I know the balance stuff is a rough ride.
First, you should be examined by an ear expert. The good news is that this may be BPV, benign positional vertigo. If so, the EPLEY MANEUVER could help, nearly immediately.
Now, of course, lyme/TBD can cause all sorts of other things regarding the inner ear -- and this could be something besides the inner ear, or in addition to that, such as blood pressure problems, etc.
Dehydration is frequent upon awakening and that can cause vertigo.
I would call your LLMD and ask if he/she has any suggestions -- and if they know of a LL neurotologist (neuro-otologist) as they are trained both in vestibular (inner/midde ear) and in brain/neuro issues and can best sort this out.
Most are trained in the Epley maneuver. There are some self-maneuver instructions floating around the web but, if this is not BPV, that could make it worse so it's best to see a specialist.
Of course, if you see a non-LL ear specialist, be aware that they often prescribe steroids, so with lyme that could make lyme worse. Any Rx suggested by others should be confirmed with your LLMD.
In the meantime, check all your meds and be sure none contribute to this. In the mfrg. information, also note if any cause changes in QT - QT is a heart rhythm thing that can trigger dizziness, too.
GINGER CAPSULES and MAGNESIUM may help until you can see an expert. Acupressure on your inner wrist, 3 finger widths up form the wrist bend line an also help to a degree.
I hope you feel better soon. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I'd completely forgotten problems with QT interval causes dizziness. But, can it cause
prolonged dizziness such as what I described? One of my medications (that I'm on
right now) does have the potential to interfere with my heart rhythm and we've been
monitoring it closely for these side effects, but in the past this problem (which I do have)
has only caused short bouts of dizziness, but nothing so sustained as what I'm
experiencing this time...? Now I'm wondering if maybe this is why things got so bad
so quickly, or rather, why it's happening at a certain time of day instead of all-the-time
(which is more-or-less how it went last time, when it was only infection-related).
Thank you Keebler for bringing that to my attention again
Do take calcium and magnesium and ginger daily (Drinking it is awfully tasty though... )
Posts: 512 | From USA | Registered: Sep 2010
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Sounds to me like it could also be your blood pressure bottoming out. Are you on any BP meds? Can you check your pressure?
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
I would explore the world of BPPV, PAROXYSMAL Positional Vertigo. Getting dizzy in bed is a classic BPPV symptom.
Here is the link for Dr. Timothy Hain, one of the best in the world of dizziness and vertigo as well as MAV, migraine associated vertigo. Basically, you have "rocks" in your ears and sometimes they get out of place. The Epley helps them move back where they belong.
Good graphics explaining the Epley and follow up treatment. Also, consider your diet and sodium content. Sodium could be creating pressure in your vestibular system. Going low sodium might help relieve your symptoms. It's not easy, basically, you have to cook everything from scratch as sodium might be listed on the label but is also hidden in other ingredients.
Posts: 125 | From US | Registered: Jul 2009
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posted
I have this, came on suddenly during a trip to high elevation. Has not gone away. Don't know if this was coincidental or related to lower air pressure.
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
I usually feel pretty much ok on waking these days with the exception of feeling very tired.
However, I can make myself dizzy and sick by forgetting that I have Lyme.
If I sway a little to the music or move my head to the beat of the music I can get very dizzy and feel sick...........and I love music.
I have to remember to just enjoy it and not move to the beat.
-------------------- cjfrank
IGG Western Blot - negative IGG Bands Detected - p18 IGM Western Blot - positive IGM Bands Detected - p23, p41 Posts: 49 | From Maine | Registered: Jul 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- amberini posted an excellent link for BPV, or BPPV.
Lou,
Those who have inner ear conditions are advised not to live over 500 feet above sea level - or to fly. Of course, that can vary from person to person but it helps to know that the higher you go, the more pressure on the entire vestibular system and that can put more pressure on the tender ear tissue if it's inflamed, as is often the case. And, it can cause damage that can take a while to repair.
In some cases, airplane travel is forbidden as it can cause permanent damage in the wrong circumstances, depending upon the specific vestibular diagnosis.
Anti-inflammatory supplements might help. Magnesium is number one. Turmeric follows, etc.
cjfrank,
Be sure to tell your LLMD.
Regarding what you describe, you might want to look over this thread. It's not normal to have the reaction that you do but it often goes along with lyme, for various reasons.
Also, as it may involve your ears, it may have as much (or more) to do with a swollen brain, again, common with lyme. Cross search lyme (or borrelia) with all 3 terms: encephalitis; encephalomyelitis; encephalopathy.
And, as meningitis is also common with lyme, when shaking the head, the neck moves and that can cause vertigo, too.
===================
ALL EARS. Specifically for LYME patients - lots of details about ears and what can help:
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posts: 48021 | From Tree House | Registered: Jul 2007
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
When I got sick in 1994 and I was told it was CFS, my job forced me to fly to Denver. I thought my head would split open from the pain as we flew west. ( I live at sea level on the east coast).
Was the last time I will EVER get on a plane. I spent 5 days dizzy with ear and head pain beyond belief.
Your info is on the spot Keebler.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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