Topic: Mitochondrial Dysfunction And Lyme REALY important for me to know
Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
I am looking to see how many have Mitochondrial Dysfunction and Lyme and if anyone's LLMD's say the Lyme causes the Mitochondrial dysfunction.
Have you had a tst for this? as I did and it showed bad Mitochondrial Dysfunction
This is really important for me to find out as I am seeing a detox doctor on Thursday and she states only CFS patients have Mitochontrial dysfunction and I am sure my lyme caused this
so PLEASE post back
Posts: 1172 | From UK | Registered: Jan 2007
| IP: Logged |
Topic: To everyone with CARDIAC symptoms please read ! -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Oh, you said:
" . . . I am seeing a detox doctor on Thursday and she states only CFS patients have Mitochontrial dysfunction . . . ."
Well, then, I would call the first thing on Monday morning and cancel that appointment. You need someone who is totally lyme literate and has been for a long time. Lyme absolutely causes mitochodrial problems, but so can other things. Still, even if other things can, they lyme is a huge part of this.
Bottom line: never work with any professional who is not educated enough to properly treat you. Never. If a "detox doctor" is not LL, they can do you more damage than good. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Have you had a tst for this? as I did and it showed bad Mitochondrial Dysfunction
What type of test did you get done? Was it done by a normal lab (that insurance pays for)?
I have cardiomyopathy and my cardiologist suspects some mitochondrial dysfunction/genetic abnormalities, yet the only test that was offered to me were genetic tests -- by some specialty labs that my insurance wouldn't pay for. And the tests were super expensive, so I didn't get them done.
Curious if there is a cheaper type of test that insurance may pay for. Thanks.
Posts: 584 | From NY | Registered: Feb 2009
| IP: Logged |
Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
[QUOTE]Originally posted by Keebler: [QB] - Oh, you said:
" . . . I am seeing a detox doctor on Thursday and she states only CFS patients have Mitochontrial dysfunction . . . ."
Well, then, I would call the first thing on Monday morning and cancel that appointment. ________________________________________________
I am under a LLMD (Dr H in NY) but this lady is renound as one of the best you can get regarding detox/Methylation etc even my LLMD knows her work, so I am not seeing her as a LLMD but for detox but I wanted to make sure I had my facts right to say that I think my Lyme & Co's cause my Mitochondrial dysfunction as I did not have it before Lyme/Co's
Posts: 1172 | From UK | Registered: Jan 2007
| IP: Logged |
Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
quote:Originally posted by Lemon-Lyme:
What type of test did you get done? Was it done by a normal lab (that insurance pays for)?
I had the Acumen test in he UK, it shows what how well the 3 different parts of the mitochondria are working by % it has photo's of all different cells from your blood - really complicated but its meant to be the most detailed test you can have. Many USA docs use this lab apparantly.......
Here are the details Acumen is a laboratory set up by Biolab's retired laboratory director Dr John McLaren Howard. He performs the Translocator (TL) Protein Study and ATP Profile. For those who live outside the UK and wish to order these tests, the blood sample can be couriered direct (in sealed tube, in plastic bag, with cooling packet and absorbent material, in padded envelope etc. to arrive maximum 72 hours from when the sample is taken.) Acumen Laboratory has no web site currently but can be contacted directly via email at [email protected] or telephone on +44 (0)7707 877175. Postal address is Acumen, PO Box 129, Tiverton, Devon EX16 0AJ.
Posts: 1172 | From UK | Registered: Jan 2007
| IP: Logged |
Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
I think I will call my LLMD tomorrow to get his opinion on this before I go to my appointment - The doc I am seeing is Kind of Lyme Literate but I need to be informed before I go
Posts: 1172 | From UK | Registered: Jan 2007
| IP: Logged |
posted
Also if the xmrv virus turns out to be implicated with Lyme as appears, that could be a factor with mito. dysfunction.
Posts: 805 | From Utopia | Registered: Feb 2006
| IP: Logged |
nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
There is a good article about Lyme and mitochondrial dysfunction at lymeinfo.net:
It talks a lot about a particular dysfunction in some way related to B1, but also covers other types. There are some helpful links at the bottom for more info on mitochondrial dysfunction and Lyme.
It looks like this condition crops up a lot with people who also have Lyme.
Have you tried searching on Pubmed and Google Scholar for studies or case reports on Lyme and Mitochondrial Dysfunction? I just started looking. If I remember I will keep looking and post here.
posted
The latest test that just came out that is the most sensitive, is called MitoDX. ``To my knowledge, MEDomics� is the first laboratory to offer a whole genome clinical diagnostic test utilizing the powerful NextGen sequencing technique'' says Steve S. Sommer, MD, PhD, Founder and President of MEDomics�. Name of the test is :
Mitochondrial Genome Testing- Comprehensive Sequencing of the Mitochondrial DNA Genome with Deep Heteroplasmy Analysis
It is about $3000 as most genomes are in anything including cardiac genetic testing. If you have a university that has a Mitochondrial/Metabolic Center as UCSD, UC Irvine, Stanford as well as others across the nation the genesists can order these and it can be covered by ins. These are cutting edge tests and they are using them on newborns that present with symptoms at birth. They are opening these tests now for adults. So many with Mitochondrial disease have been ignored for 40/50 years of their lives.
And yes Lyme is always a trigger......The national mitochondrial association is http://www.umdf.org..I hope this helps. They do offer Mito cocktails of certain vitamins and carnitine that help correct this. I think Dr. Garth Nicholson has one of the best solutions with NT Factor to help the mitochondria
..It is a chicken or the egg factor. Are we predisposed by genes and then come in contact with a trigger whether bacterial,viral,environmental? or does the pathogen change the DNA makeup of our cells? Either way the Mito is damaged but can be helped to repair.
Posts: 871 | From orange county, ca. | Registered: Jan 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic