Topic: If you could see any doctor you could! Who are the top 5 -10 in the USA
springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
I am trying to learn who is the best in the US.
If I had a chance to see any doctor in the USA who would I choose?? I do not know...
Can you help me.. with a list of the top 5 to 10 doctors and who they are and where they are ?
Thanks
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
Looking reputable and recognized lyme disease expert or University Lyme Program.
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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bettyg
Unregistered
posted
please send poster PMs of any names please; thx
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Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
posted
PM sent
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
THANK YOU THANK YOU
I think my family is confused and not educated on the full debate of two sides of doctors.
I am too still trying to get more educated.
But is there not a top list of doctor who do not believe in Long Term Chronic Lyme and Do not believe in Long Term Treatment as well. Such as Dr. W in NY?
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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posted
Why would you want a list of those who do not believe in long term care?? That is useless.
DR W in NY????????
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
I think that it might be useful to the whole community to develop a Top US list of best LLMDS and then another TOP list of those to watch out for and that are not recommmened.
Esp for newbies and those willing to travel.
I have had a hard time finding out who is who and what is what and it has taken me a while to figure it out.
It would be helpful to cut out all this work and maybe put such a list together as well as the lists of doctors per state.
Can we do this?
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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bettyg
Unregistered
posted
showers,
what we do NOW is hard enough to keep up to date and many folks to notify.
SORRY, not on MY part of what i volunteer to this lyme board!
boils down to some folks thing certain llmds are great; many others disagree ... no easy win-win on this one in my opinion.
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
springshowers if you received a lot of useful information from your post then you can pass it on to me. But I think having a top ten list would be difficult as it's too subjective. Everyone will
have a different take and someone that is an easy case will think one doc is great while someone with a difficult case may not.
As I mentioned, if you have good info to pass on I can take a look and see if I can put it into some kind of usable format.
May be we could have a most popular list.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
Hello.. Sorry if the request or idea is seemingly unreasonable.
Just trying to learn more and also help others.
I think the ideas of most popular is a good idea.
But i also understand what your saying. Its subjective.
At the same time..Think of some of us who came in here not even knowing anything at all about lyme and the controversy or the various associations and doctors.
I was thinking more on an overall basis and not specific or picking apart all doctors to get to that top list..
But well. Anyway..
ABXnoMore. got your PM and very much appreciate it and all you do..
I think your ideas of checking the lists on those sites is a great idea.
Still trying to point my family too in the direction of the sites that are supportive of lyme and believe in chronic lyme.
Your also right about the fact that things are evolving and some doctors are coming around to more integrative approach. And that is very appealing to me and many people.
again.. I was thinking in much more vague terms I think that you guys and since you have been around so much longer than I.. And from your PM to me. You know details that I would Never know..Even about each doctor.
Your information and experience is invaluable.
Thanks for being here and for helping so very much. I hope you know how much you are appreciated.
Blessings.
For now.. I might say to a new person to just NOT get doctor referals from the IDSA or the ALDA.
And that is a good start. That is what happened to my family. They did not and still do not know the difference between those referrals and the others. So what can happen is patients and families can get pointed there without realizing that there even is a difference in doctors whatsoever.
I know it sounds crazy. but it happens believe me.
Even I took awhile to sort it out and if your new to this disease it does take awhile.
Thanks..so much.
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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posted
Sorry, Spring, that request made me laugh - do you have hours - days? - to read a list of doctors we shouldn't go to for Lyme?!
Better to focus on the ones who are helping us.
Hopefully, Siciliano sent you a decent list.
It's more a matter of matching people up with a doctor that will work for them.
There's a lot of variety in the way we present, and in the treatments.
We can present with all kinds of symptoms, as well how long we've been sick. We also have varying abilities to detox. All that needs to be matched up with a practitioner who's experienced in treating the kind of patient we are.
Doctors treat with orals/bicillin shots/IVs. They treat with complementary medicine - all kinds of treatments. They treat aggressively or gently. Some specialize in treating people with detox difficulties.
If anything, I guess a list could be organized about the kind of treatment a good doctor offers, like do they do abx only, or abx/alt, or alt care only; are they aware of detoxing. etc.
Don't know if Siciliano or Abxnomore have anything organized like that?
For your family - if they could watch the "Under Our Skin" film, and read Pam Weintraub's book, "Cure Unknown" -
Also to watch any of the July 30 hearings posted at the IDSA's website, idsociety.org - they'd start to see what we are saying about chronic Lyme.
Posts: 13171 | From San Francisco | Registered: May 2006
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lou4656
Frequent Contributor (1K+ posts)
Member # 10300
posted
Just putting my two cents in here . . .
Springshowers said, "Think of some of us who came in here not even knowing anything at all about lyme and the controversy or the various associations and doctors."
Springshowers -- That was all of us when we first found Lymenet. We did not understand anything about lyme or the controversy. I understand the frustration of trying to figure this all out.
That is why those of us who volunteer on this board are here . . . to try to make things easier for those who need some direction and guidance. And we know how difficult it is to sort through all the conflicting information, especially when you are ill.
Educating yourself is the best thing you can do for yourself.
I can recommend several good LLMDs in Maryland. Send me a private message if you would like the names.
Hugs to you Springshowers -- and to your family.
-------------------- LouLou Posts: 1276 | From maryland | Registered: Oct 2006
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I know what you mean about family members being misinformed and I share your desire to help them learn the truth about Lyme disease.
My brother-in-law is the head of neurology at Dartmouth, and he believes the IDA's theories. The IDA contends that the bB bacteria is self-limiting, and chronic lyme symptoms are all in our heads.
I'd like to get him to read some ILADS research and data, and I invited him to the ILADS conference in DC Oct. 24-25, but he couldn't attend.
I'd like very much to eneable him to see the ILADS position, but, my real priority is managing the treatment for our whole family of 5, regardless of what he thinks.
We were fortunate to have been diagnosed, and by the help of people at this site, to find a great llmd.
-------------------- Linda Posts: 39 | From Lexington, Virginia | Registered: May 2009
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