posted
Have had lyme for 1-5 yrs- been on doxy for 4 weeks now- need a Lyme specialized doctor who will accept bluecross/blueshield.
Albany Area
Posts: 15 | From NY | Registered: Nov 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Welcome to Lymenet
I have sent you everything you need to help you find a Lyme literate medical doctor (LLMD) and info to learn more about this illness.
Please join in our discussion in medical, where we have many members ready to share their experience and knowledge about this illness with you.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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WildCondor
Unregistered
posted
Abx..what are you SENDING these people???They all keep coming back to me...asking AGAIN. When it comes to NY state, what are you telling these people?
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Condor, I have a very thorough list, well researched with links for support groups, as well. I provide everything they need to get started, links, info on the illness, how to choose an LLMD, etc.
I know the north east area very well, NY, NJ, CT & PA in particularly. I know the in's and out's of this illness this I'm not new to Lyme disease or our LLMD's.
If they are coming to you, it is most probably because you have a website and they find you when doing a search and also many know you in the Lyme Community and on Lymenet, so they probably are hoping to get additional information and confirmation.
Not to worry, it is not because I am not providing them with the most comprehensive information. I know what a good LLMD is and who they are.
[ 11-24-2009, 08:39 AM: Message edited by: Abxnomore ]
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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WildCondor
Unregistered
posted
Please send me your list ABx...I need to see it. Something is wrong!!!!!!!
I have gotten 12 emails just this morning about this topic and referrals that have been bad!!!
posted
yeah sure, I want to make sure these patients are getting GOOD referrals!!! I am extremely alarmed by the feedback and cries for help I am getting! Email me it please whomever has it. Thanks.
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WildCondor
Unregistered
posted
Abxnomore...still no email from you. Let's see the list
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
That is correct there was no email from me as I have been away for the Thanksgiving Holidays and had arranged for one of the people who helps in seeking to cover for me. No posts have gone unanswered. In fact, I am still away but I'm back on line helping in "seeking" today.
I'm a bit dismayed by your constant demanding of such list on the open forum making it appear as if I was being uncooperative and that you have some kind of authority to be overseeing what I am doing. I've been helping here in seeking exclusively for at least eight months or more and
now I have this long post of your demanding info from me and the tone of your posts are less than friendly. Had I been on line I would have been happy to discuss this situation, but don't appreciate your making it appear as thou I have been doing shoddy work or that I'm ill informed.
As I mentioned, I am not new to Lyme disease and the list I use is a different list than the one that was used by a previous member who helped in this section. The list I use is not "mine" but was provided to me and it is a list that has been complied over many years by a previous well known and active member of this site and continues to be improved upon with input from several members.
I find your posts above quite demanding and rude, and frankly if you were getting all these requests and complaints it would have been easy enough for you to ask one of the people who contacted you to provide you with the information in question, instead of continually posting and demanding such list.
I am still out of town on holiday and am catching up on many things. I will consider all that has transpired above, as I catch up on things. Right now, I have lots of work to do and will handle things according to my own priorities.
I think when wants information, it's best to ask nicely and without an attitude or assumption that only you know what's best and certainly not by constantly demanding or thinking that I am obligated to give you the list I use for you to "review", given the way you have conducted yourself here. It sends a very combative and hostile tone, as have many of your posts of late and this site is certainly going thru enough upheaval and we should be working toward effecting useful change in a constructive manner. We don't need anger or agitation but teamwork, patience and understanding.
Thus far, I am not responding positively to anything I have read above, after taking a few days off. Are you the "boss" of "seeking" because as far as I know we are all just members here? Attitude and tone is so critical in this section and by that I mean a constructive, helpful one where we all work together to work toward the common good.
If you seem to think you know the only ten LLMD's in the country, which would leave most of our members with little access to care given the many obstacles patients face when trying to get care, then by all means start spending a good number of hours here daily, as I do, and answer the enormous number of posts me and others answer each day.
We certainly can use help here that is caring, thoughtful and thorough but not biased.
Wow, what a welcome back!
[ 11-27-2009, 02:54 PM: Message edited by: Abxnomore ]
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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WildCondor
Unregistered
posted
Abx...
I was asking for the list so I could look it over with you and make sure you don't have any doctors on there that I have gotten bad feedback on. I don't know until I see it, from you. There is an urgency to this because patients are trying to make Doctor appointments and the info might be poor. Lists need to be reviewed and input from all sides and patients added for the good of everyone to make informed choices.
We all need to work together here. As for power and control, that is juvenile and I don't claim to be the boss of anything or care about that. My concern is for the patients and that the sending of these lists may be causing more harm than good. I am not interested in power trips or bickering nonsense and fighting on here, it solves nothing and only hurts the Lyme community.
You seem to easily send this list to everyone in Seeking without hesitation, so what exactly is the hold-up? If I don't see your list, I can only assume that there is misinformation on it. If we can share info and work together, we might be able to help everyone! Thank you!
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posted
I am going to say something here because these discussions are making my hair stand on end.
While practicing as a nurse for 35 years you never discussed any medical provider's shortcomings in front of the patient. If you felt things were "off" about treatment you found tactful ways of making the patient come up with that idea themselves. You could recommend someone you thought was good but that might not be the right fit for the patient.
Of course if someone was dangerous in their practice of medicine you could be more blunt but better have the facts to back that statement up.
When I was first diagnosed I was so ill and so confused; I had problems with accepting the fact my diagnosis was real, I was a nurse for God's sake and had never thought Lyme could be involved in my health problems.
So imagine how difficult it is for a lay person who is new to this coming here for answers.
They ask for referrals to a lyme literate physician, which is a big step in itself, and then they see the moderators disagreeing with each other.
Not a good first impression and certainly not building any confidence in the site
Posts: 130 | From Central NY | Registered: Jul 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Renee, I agree with you totally with one exception in that there are no moderators who have posted on this post and I don't believe I have seen any of our moderators disagree with each other thus far, thou I could have missed something.
Condor, perhaps you should read your posts and my post again. It didn't sound like asking to me. I expressed to you that I have been out of town on holiday and am just getting back on line and am still out of town with family for the holiday.
If you have certain doctors that you think are problematic, why don't you PM them to me until I get a chance to catch up with things.
"You seem to easily send this list to everyone in Seeking without hesitation, so what exactly is the hold-up? If I don't see your list, I can only assume that there is misinformation on it. If we can share info and work together, we might be able to help everyone! Thank you!
Read my post again. Assumptions only result in speculation and misinformation. Yes, when I am home and helping in seeking I do send it to those who place requests for help.
If you have inside scoop, you surely could have passed it along, and should have been doing so all along, to those of us who help in seeking on a regular basis via PM. Any lists that are sent out are sent out with a plethora of information about how to navigate the in's and out's of this illness, including many patients comments both good and bad about people experiences with these doctors.
In the end, we provide a starting off point and have other sections on lymenet for those who wish to get involved to do so and learn more.
Ultimately, it is up to the patient to take the information and digest it and decide how they will decide to approach handling their health and how they will choose based on reading patients comments and the going thru all the links that provide LLMD info as well as doing research and legwork. Choosing any doctor, requires being involved, being informed and asking lots of questions. It is not up to anyone in seeking to recommend any LLMD, only to provide them with all the information they need to get started.
Yes we certainly all do need to work together I have never implied that I was not willing to do so. Why don't you pass the three lists that you have expressed to me that you have lists have along to me and I can compare what you have, as well.
When one helps in this section, as long as I have on a daily basis, I get a lot of patient info and have learned even more than I already knew from when I first started here thru first hand communications with many of the members here.
That is not to say that working "together" can't perfect our information but in the posts you placed above you did not convey a "working" together milieu.
Now, after all this time and after all the complaints you have received are you saying that you have not yet asked one of these people to send you a copy of the list they received since I was unable to due to the fact that I was out of town for Thanksgiving??
Send me the LLMD's names in question, and when I catch up with things I can spend more time on this issue.
I'm trying to enjoy my holiday and devote my time to answering posts in seeking at the moment.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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