posted
the dr i saw that i tried to work with dr c who did not believe in chronic lyme said i have so many issues i am better off at cleveland clinic so my care will be coordinated
i know mayo would not take anyone with a diagnosis of lyme, cfs or fibro but i am wondering if cleveland clinic might see me for my other issues....and if the dr might be willing to work with dr c. i am at a loss and am going to die without treatment, as told by my prior llmd who i had to leave to be closer to family.
i know some of my posts sound contradictory but quite frankly...moving is lesser of the two evils...we can't be in az anymore with no family at all, esp for my husband and my family situation is so screwed up...marriage included that i have to make a decision to be homeless or continue to take abuse from my family. sorry, off topic. will post in other section and edit when i get some energy tomorrow.
-------------------- Sick for 20 yrs+,dx'd 10 yrs ago fibro/cfs & hashimotos.dx 4 yrs ago w/neurolyme,recent adrenal failure, recurrent spinal cord injury,probable ankylosing spondylitis. Unable to get treatment & severe Cognitive, psych & physical symptoms progressing. Posts: 82 | From az but moving to ft lauderdale, florida= plantation. fl | Registered: Aug 2009
| IP: Logged |
posted
yeah..i agree...that is the thing...we don't know if i have other issues besides the others that were already diagnosed.
I just need a primary care drs can work together with other drs and that are good...
Removed comments about Florida doctors.
[ 11-30-2009, 01:26 AM: Message edited by: Anna Lee ]
-------------------- Sick for 20 yrs+,dx'd 10 yrs ago fibro/cfs & hashimotos.dx 4 yrs ago w/neurolyme,recent adrenal failure, recurrent spinal cord injury,probable ankylosing spondylitis. Unable to get treatment & severe Cognitive, psych & physical symptoms progressing. Posts: 82 | From az but moving to ft lauderdale, florida= plantation. fl | Registered: Aug 2009
| IP: Logged |
posted
Again, contact one or all of the 8 Support Groups in your State that will help direct you to Drs that will work with who you have been referred to.
posted
i havecontacted some of them and all thesupport seems to be in central florida.
-------------------- Sick for 20 yrs+,dx'd 10 yrs ago fibro/cfs & hashimotos.dx 4 yrs ago w/neurolyme,recent adrenal failure, recurrent spinal cord injury,probable ankylosing spondylitis. Unable to get treatment & severe Cognitive, psych & physical symptoms progressing. Posts: 82 | From az but moving to ft lauderdale, florida= plantation. fl | Registered: Aug 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic