posted
was recommended to dr c but it is too far for me to get too and so many mixed reviews and i cannot find a dr to work with me here locally
i know finding good llmds that take insurance is like finding a needle in a haystack but i am desperate to find someone who i can get to...looked into angel fligt and i don't even meet their requirements to fly.
thx so so much!!
Thx so so much
i went on lda site and pulled up a bunch of names and then spoke to lda rep and said most people go to dr c or go out of state..had no explanation for thje others....people act like there are no llmd's in fl what so ever other than Dr. C but then why do they come up under lda search????
very confused about this thx for clarifying!
I am moving to be sout florida to be closer to family and my NY friends without having to bare the cold but i am coming up with no support groups for lyme in my area..only central florida...any in person groups in and around ft lauderdale..i cannot drive and my husband and other supports here cannot take me too far either due to hectics chedules.
thx
Combined four posts into one. Eliminated Dr.'s names in posts.
-------------------- Sick for 20 yrs+,dx'd 10 yrs ago fibro/cfs & hashimotos.dx 4 yrs ago w/neurolyme,recent adrenal failure, recurrent spinal cord injury,probable ankylosing spondylitis. Unable to get treatment & severe Cognitive, psych & physical symptoms progressing. Posts: 82 | From az but moving to ft lauderdale, florida= plantation. fl | Registered: Aug 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I have already provided you with the Florida LLMD list and all the referral links I know of. I'm very sorry but I don't have any other info to send you.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
There are 8 support groups for the State of Florida, I would think any of those groups would readily give you help, irregardless of where they are in the State.
If you need someone who takes insurance, then you would probably not want to go to someone who is "super expensive", just my opinion.
posted
abx...i appreciate the list..though I can;t figure out why noone else in florida knows these drs...
i called some of the support groups in fl and they just know of one dr....and he is in tampa and he not only requires you to find a local dr to work with, which i cannot do on my own, but i have no way to get to tampa, which is 4-5 hrs from me.
also..i thank you for the resources... as i mentioned..problem is..I am so cognitively impaired i cannot even keep info straight to call them and i have noone else in my family to do it as they are all too busy or do not believe in chronic lyme
So..if it is the case that there is only one dr in florida and i cannot get to him or any other dr for that matter, then I have no choice but to stop treatment indefinitely...
my family is considering nursing home placement at this point because they do not have the means to help me get better (i.e. making calls, finding me a dr, getting me to drs, etc)
so i guess they'd rather write me off and they said I have to emotionally come to acceptance of my life circumstances.
Meg
Absolutely, I cannot go to a dr who is super expensive...I was planning to beg honestly...
the drs who take insurance who I have been too have been limited in how they can help and have said I have such a complicated case they cannot do more for me and I need IV abx but I cannot get to anyone that will do that for them.
Thanks so much for your help. I apprciate you trying to help but you are right...
you did what you could and due to my life circumstances and inability to sift through or understand info and help myself and noone to do it for me or get me to drs,
I just have to come to acceptance that i am going to die from this and going to be placed in a nursing home.
All my best to you!
-------------------- Sick for 20 yrs+,dx'd 10 yrs ago fibro/cfs & hashimotos.dx 4 yrs ago w/neurolyme,recent adrenal failure, recurrent spinal cord injury,probable ankylosing spondylitis. Unable to get treatment & severe Cognitive, psych & physical symptoms progressing. Posts: 82 | From az but moving to ft lauderdale, florida= plantation. fl | Registered: Aug 2009
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posted
Lymebrained said: i called some of the support groups in fl and they just know of one dr....and he is in tampa and he not only requires you to find a local dr to work with, which i cannot do on my own, but i have no way to get to tampa, which is 4-5 hrs from me. ******** Dr C is lyme literate and the other Drs you were recommended, by whomever, are not. The Support Groups know what they are speaking about.
I cannot help much with the financial issues of this disease, but I can tell you I did not have the money to go to an LLMD when I became ill.
I charged my visits to a credit card in order to see who I needed to to get me well, and I'm so thankful I did. I also had to travel 9 hours one way to get there.
I wish you the best LB and hope that you will get the treatment you need. Maybe family or friends, church, angel flight can help in your search, for rides?
posted
thx meg...we are already maxed on credit cards and cannot charge anymore.
can you send me the support groups again..i lost them and am so confused because the support groups the lda lists are different than the ones i am finding. and also who you saw to get well
my family is useless unfortunately and angel flight said i am too physically unstable to take them ;(
i am so glad you got well meg..gives me hope for others!!!
xo
-------------------- Sick for 20 yrs+,dx'd 10 yrs ago fibro/cfs & hashimotos.dx 4 yrs ago w/neurolyme,recent adrenal failure, recurrent spinal cord injury,probable ankylosing spondylitis. Unable to get treatment & severe Cognitive, psych & physical symptoms progressing. Posts: 82 | From az but moving to ft lauderdale, florida= plantation. fl | Registered: Aug 2009
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posted
yes...i just checked these groups out...all near central florida which i have no way to get to but i thank you! i joined some of the groups online at least for some support!!!!
i will read your success story as soon as i get some more energy..i am so glad you were able to get well. much gratitude to you!!!
-------------------- Sick for 20 yrs+,dx'd 10 yrs ago fibro/cfs & hashimotos.dx 4 yrs ago w/neurolyme,recent adrenal failure, recurrent spinal cord injury,probable ankylosing spondylitis. Unable to get treatment & severe Cognitive, psych & physical symptoms progressing. Posts: 82 | From az but moving to ft lauderdale, florida= plantation. fl | Registered: Aug 2009
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