posted
Hello, I am 38 and have had Lyme disease for 5 years. I have been treated with oral antibiotics several times and IV doxycycline once.
On August 18th 2005 at 6:00pm is when I felt the disease take hold of my body. I was walking through a store and all of a sudden had to sit down.
By the time I got home 30 minutes later my temp. was 102 and My head and neck hurt so bad I could not bear to move.
I was admitted to the hospital to check for an infection in a newly implanted hip I had done in Feb. 2005, which came back negative. and I was diagnosed with the flu and sent home.
After about a week I began developing a circular rash on the back of my left thigh. The circles then began covering my entire body including my face. I was covered with intersecting circles.
I called my Dr. and that is when I was told "Oh yeah the Lyme titer they did in the hospital was positive, you have Lyme disease". Not sure if I ever would have known if I didn't call to report the rash.
I was put on oral doxy for 10 days. Then when symptoms persisted I saw ID who put me on a longer course of doxy and zithromax.
Fast forward about 4.5 years to now and I have developed severe neurologic symptoms.I have spells which look like seizures but I have been assured by MANY neurologists they are not.
They start with exhaustion,and increased heart rate, then 1-2 mins. later My eye muscles tighten and pull my eyes upward,My left face,arm,throat,and leg go numb and cold. I can hear people talking but am unable to speak, swallow or move.My B/P has been measured during and was 200/110, with a HR 110.
They last for seconds to a minute, and may occur several in a row. After I feel so exhausted, my speech remains very slow and difficult to understand, and my walking is slow and uncoordinated.
These have been happening for about 3.5 years now and I have been told they are "psuedoseizures" brought on by anxiety and emotional distress. NOT lyme disease.
I know there is neurologic damage happening to my body that the Drs are missing. I am afraid I will have a stroke if I don't get treatment soon because they are getting more severe, and the weakness is lasting longer each time.
Has anyone else had similiar symptoms? I know I am not crazy. I just need to find a Dr. who will believe it too.
Posts: 22 | From maine | Registered: Jan 2010
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Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
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Hi, Nurse Lymy and WELCOME to our lyme site. We are glad that you came to us for help!
I have sent you a private message, click on the flashing envelope.
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
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So sorry you are going through this much. You really need a doctor who knows lyme. I am new to this and the more I read the more I appreciate how difficult this is to get to the bottom of. I found my doctors through the Yahoo Lyme group in my state..so if you don't get one from the members here, maybe check there.
Prayers for your health and doctor.. CalMom This is a story of a man diagnosed with ALS - no one believed he had Lyme, but he isgetting better with treatement.. it was is the San Jose Mercury News last week.
Fisher: Learning about Lyme disease the hard way A month ago, Bart Fenolio was told he had Lou Gehrig's disease and had two months to live. Doctors advised his wife, Heidi, to take him home and call a hospice.
But Fenolio is proving the doctors wrong. Instead of getting worse, he's growing stronger each day, thanks to antibiotics. That's because he doesn't have Lou Gehrig's disease, which isn't curable. He has Lyme disease, which is.
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Nurse Lymy and WELCOME to our lyme site. We are glad that you came to us for help!
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