posted
Well, I have finally been diagnosed with Lyme, Babesia an Bartonella. Now my son is experiencing stiffness in his knees and pain in his hip. We had a bad flea infestation this summer when he came to visit. I was extremely ill at the time. Now I am quite concerned for him. He is in college in Portland. Any info on LLMD's in that area would be greatly appreciated.
Thank you, Ken
Posts: 2 | From Charlottesville, Virginia | Registered: Nov 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I live in Portland, too.
Just wondering, was your son diagnosed in Portland or there in Virginia this past summer? There are no LLMDs here but there are at least two ILADS-educated LL NDs (naturopathic doctor).
The Oregon Medical Board will not allow any MD to treat lyme beyond a very short time, "chronic lyme" is not even allowed to be whispered in this state - and they usually also disregard the importance of other tick-borne infections.
However, you might find one or two MDs who can run basic monitoring tests and won't kick your son out of their office for mentioned the word "lyme" - as often happens. If he was actually diagnosed in your home state, that will help as many doctors here actually believe lyme cannot exist within our state lines.
The local support group contact can guide you. It is a very active group, meeting every two weeks so I'm sure someone will find your son the help he needs.
Was he also assessed for other tick and flea-borne infections such as bartonella or babesia?
Good luck - and take care of yourself, too.
=========
Sent: Portland support group phone contact; Two LL NDs in Portland; LLMDs names in Seattle and in San Francisco.
Also sent links to a few books. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
posted
Hi, Str and WELCOME to our lyme site. We're glad you came to us for help.
I have sent you a private message (pm) also.
Also, check out our great "Medical Questions" forum where you can ask all the questions you might have and our wonderful, knowledgeable members will answer them. Just read some of the threads and you'll see just how informative they are!
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- While it is extremely rare for a doctor to recognize and treat lyme in Oregon (and the are truly pressured by the state medical board NOT to acknowledge or even treat lyme beyond a few days - this case of a different kind of spirochetal infection (a cousin to lyme) is certainly good news. If eye involvement is part of your son's symptom list, perhaps finding the exact doctors who worked on this case would be helpful.
Borrelia hermsii causing relapsing Fever and uveitis.
Am J Ophthalmol. 2006 Aug;142(2):348-9.
Excerpts:
METHODS: A 12-year-old boy with two weeks of relapsing fevers 10 days after camping in remote eastern Oregon was examined.
Borrelia hermsii immunoglobulin M and G levels were markedly elevated. Intravenous ceftriaxone, followed by four weeks of oral cephuroxime was administered, but the patient developed unilateral floaters and blurred vision in association with anterior and intermediate uveitis.
RESULTS: Doxycycline was administered for presumed residual infection. Four weeks later, the visual acuity had improved. The anterior chamber was quiet, and topical corticosteroid was tapered [off] successfully.
CONCLUSION: Although rare, Borrelia hermsii should be included in the list of spirochetal diseases that are associated with uveitis. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Lyme Support Meeting
Topic: General sharing Date: This Sunday, February 14th, 2010 Time: 1-3pm
Location: Legacy Good Samaritan Hospital, 1040 NW 22nd Ave, Portland, OR
(First Floor) which is across the street from the Hospital's main entrance. There is a parking garage behind this building where you can park and a doorway in the garage on the first level that connects to the building. We will be meeting in the first floor conference room which is near the restrooms.
As a reminder, please do not wear perfume or cologne at the meeting. Many individuals with Lyme also deal with chemical sensitivities.
posted
If someone could forward me some recs as well, I would appreciate it.
I live in Southern Oregon and have been seeing an LLND but will probably be moving to Portland in about a month and need an LLMD/ND in PDX/SW WA to continue treatment.
Posts: 4 | From ashland, oregon | Registered: Mar 2010
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Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
posted
Hi, Yesua--I sent you some information and I hope you find it helpful.
Also, check out our great "Medical Questions" forum where you can ask all the questions you might have and our wonderful, knowledgeable members will answer them. Just read some of the threads and you'll see just how informative they are!
and WELCOME to our lyme site. We're glad you came to us for help.
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
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