posted
I was positive for lyme with bulls eye rash in 1990 in mommouth county new jersey. I was given medicine for three weeks. I then had flu like symptoms 1+months later. my enlistment in the service was up. I never thought about it again. Three weeks ago I woke up with blurred vision on both sides of both eyes. after ER visit,CT,MRI 3 opthalmalogist and a neuro opthalmogist. I have WEBINO something in the nerves of the eye. Then in past 14 days haedaches,neckaches,joint pain, dizzy,chestpains,and still WEBINO Went to ER again for chest pains. PLEASE HELP!! lyme test IGG band 41 positive???
Posts: 5 | From Jacksonville Florida | Registered: Apr 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- bears,
Welcome but, of course, sorry for the reason you are here.
Many here have trouble with vision. So that more can read and reply, here's your post broken up for easier reading:
------------- bears06 writes:
I was positive for lyme with bulls eye rash in 1990 in mommouth county new jersey.
I was given medicine for three weeks. I then had flu like symptoms 1+months later. my enlistment in the service was up. I never thought about it again.
Three weeks ago I woke up with blurred vision on both sides of both eyes. after ER visit,CT,MRI 3 opthalmalogist and a neuro opthalmogist. I have WEBINO something in the nerves of the eye.
Then in past 14 days haedaches,neckaches,joint pain, dizzy,chestpains,and still WEBINO Went to ER again for chest pains.
PLEASE HELP!! lyme test IGG band 41 positive???
(bears06 in Jacksonville, Florida) -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I am so sorry to be the one to share what your doctors should have told you/done 20 years ago. If you do not already know, lyme is a very political disease. Only a few doctors have done the necessary research and they are constantly bombarded by other doctors who are just not interested, too lazy or just don't care.
Likely, your regular doctors have not been taught the truth about lyme. It's a sub-speciality when correctly approached but most doctors think it's no big deal.
From a search, I found that WEBINO is Wall-eyed bilateral internuclear ophthalmoplegia. Without getting into details, lyme can cause all sorts of problems with the eyes, brain, nerves, inner ear that affects vision, etc.
Lyme likely never really left. Three weeks' treatment is far too little. And lyme requires more than one antibiotic at a time.
It becomes dormant, goes into a cyst form but can reemerge at anytime, especially when under stress or with steroid use. (Steroids are horrible for lyme).
Some patients can see long remissions but it can return. At this time, there is no cure but many do get better and then if it flares, prompt attention sets them right again - although the path is neither short nor easy.
You could also have coinfections that were never addressed. You should also be tested for other tick-borne infections. In the meantime, GINGER Capsules might help the vertigo some. Magnesium, too.
Here are links to SAVE to your personal reference file. You will be relying on Dr. B's sets and the book by Dr. S, too. It's good to have those at your fingertips.
Good luck.
=============
I see that you have already posted in the "seeking a doctor" forum. But, adding on here, I see you piggybacked your request onto another poster's thread. You may need to start your own thread there in order to get a reply.
You do NOT need another lyme test if you were positive before - or EVER had a bulls eye rash, which you did. You need a good LLMD to sort it all out, though.
=================
* This explains WHY you need an ILADS LLMD or ILADS LL ND (naturopathic doctor) to guide your treatment protocol.
CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" - 2007
" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."
"...If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."
Persisting atypical and cystic forms of Borrelia burgdorferi and local inflammation in Lyme neuroborreliosis
Excerpts from the Conclusion:
. . . The results indicate that atypical extra- and intracellular pleomorphic and cystic forms of Borrelia burgdorferi and local neuroinflammation occur in the brain in chronic Lyme neuroborreliosis. . . .
. . . The persistence of these more resistant spirochete forms, and their intracellular location in neurons and glial cells, may explain the long latent stage and persistence of Borrelia infection. The results also suggest that Borrelia burgdorferi may induce cellular dysfunction and apoptosis. . . .
In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:
Vision: Natural Ways to Maintain Eye Health - By Jim English
Excerpt:
. . . A number of nutrients have been extensively studied for their ability to treat a wide variety of vision-related conditions by preventing the damage caused by free radical activity and by enhancing the delivery of blood and oxygen to the retina to help repair tissues. . . . -
[ 04-09-2010, 06:23 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- All that should give you enough to study for a while but if you have other medical questions, be sure to post over in the Medical Questions forum:
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Sorry to say but lyme CAN come back in 20 years or any time the immune system is weakened, just like a cold sore and other illnesses such as shingles (chicken pox the second time around).
Posts: 9931 | From Maryland | Registered: Dec 2007
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Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
posted
Hi, bears and WELCOME to our lyme site. We're glad you came to us for help.
I have sent you a private message (pm) also.
Also, check out our great "Medical Questions" forum where you can ask all the questions you might have and our wonderful, knowledgeable members will answer them. Just read some of the threads and you'll see just how informative they are!
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
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posted
Hi - Medical Questions or General Support would be good categories for you to post in.
Lyme sometimes comes on hard after a stress event that lowers our immune system or taxes our body in some way.
Re eyes, I was able to stop eye symptoms, including blurred vision, by drinking mangosteen juice, an anti-inflammatory antioxidant juice. I drink the Ultra brand with 70 minerals added. And there are lots of brands available.
If you try it, go slow and drink a lot of water also.
We have threads on it that you can find by typing "mangosteen" in the Search box at the top.
You will need to treat, it will be a process, learn everything you can to be as informed as you can as you go through the treatment process.
Posts: 13171 | From San Francisco | Registered: May 2006
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