-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
posted
Sent you a pm.
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
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posted
anyone able to PM me the full name and/or phone number so I can find out if he would see my family (from TX). We can get a direct flight to Baltimore on Southwest.
Posts: 758 | From now TX | Registered: Mar 2001
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-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- To be fair, is anyone ever really 100 % after lyme? "Completely well" can take on new definitions at every juncture. Remember that there is no "cure" for lyme but many have seen solid and long-lasting remissions (as long as they take care of themselves &/or promptly attend to any symptoms that may flare).
Be sure to read his blog, too, for a sense of his expertise. Although my sense is that he keeps separate from ILADS for matters regarding the politics of things, he is very LL, basically is ILADS-educated, although varies from the ILADS guidelines, to a degree (mostly regarding support supplements - but that can be a patient's choice, too, as long as open communication is involved).
I've read of several who've seen success and, from his blog, he seems very dedicated and aware of all the full scope of tick-borne infections. -
[ 07-15-2010, 07:17 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
He seems to have stopped blogging which concerned me.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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onbam
Unregistered
posted
I know people, personally, who are 100% back to where they were in terms of symptoms (not his patients, but I don't know any of those). The significance of a cure lies in the fact that, with current treatments, patients remain able to relapse and spred the disease to others.
He seems, from his blog, like a good doc who needs to read up on trnsmision of the disaese.
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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