posted
Hi, I am brand new to this forum and to Lyme. My 7 yr old daughter was diagnosed two weeks ago. She noticed a huge bump on the back of her head and we watched it for a few days thinking it was a mosquito bite. Four days later she developed a fever, which would go up and down over the next five days. In the meantime, the ped. diagnosed her bump as a reactive lymph node. Her neck hurt so badly she couldn't bend it forward. She also had headaches, chills, stomachache, general flu-like symptoms. When her neck pain wasn't going away the ped. sent us to Inova FX Hospital ER, thinking it might be mono or an infected lymph node.
When the mono test came back negative, I asked the nurse, as she tried to discharge us, whether it could be Lyme and would they please do the Western Blot test. (My sister-in-law has chronic Lyme so it is on my radar.) She blew me off saying, ``You have to have a bullseye rash for it to be Lyme.'' My daughter only had a vague, pinkish rash around one eye, which the ER doc thought was cellulitis! I knew that Lyme sometimes shows with a rash and sometimes not, but that certainly it doesn't have to be a bullseye. I found the MD in the hallway, repeated my concern to him, and he agreed that it had crossed his mind as well. Nothing like diagnosing yourself! I know you all are used to that!
Needless to say, her tests came back positive three days later and she started Ceftin twice a day for 21 days. (She can't take Amoxicillin due to a past allergy to it.) Knowing what I know from my s-i-l, I know that 21 days is not long enough.
Wanting to do everything possible as soon as possible to make sure we nail this bacteria, we visited an infectious disease specialist on Monday who examined my daughter and was so low key about it all I would have thought she just had a simple cold. She felt confident 21 days would be curative and that my daughter will have no further problems.
I am terrified for her to go off the Ceftin next Wednesday... The ped.'s office is not supportive of investigating this further, agreeing with the ER's ``red book'' ``cure'' of 21 days. I do not currently have an appt with any other LLMD because I don't know who to call. What can I do, short of calling the pharmacy and telling them I spilled the Ceftin and need more??!!
Does anyone have any LLMD that I can call in Northern VA?? I would be happy to travel to DC or MD also.
Thank you SO MUCH for any help!!
Posts: 2 | From Northern VA | Registered: Jul 2010
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Sent you some names and some info.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Can I get the list, too, Please? Northern Virgina (arlington, Alexandria, fairfax, sterling - any will work). Thanks! KT
Posts: 1 | From dc | Registered: Jul 2010
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Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
posted
Hi, KT and Welcome! I sent you a private message, click on the flashing envelope.
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
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posted
Check out the support groups listed under "Chapters" at www.natcaplyme.org. Attending a meeting may give you a chance to meet other patients and discuss physicians.
-------------------- I am not a doctor nor a trained scientist. Do not rely upon what I write to diagnose or treat any medical condition.
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