posted
Hi. . . My ds is 7 and has recently been diagnosed with LD. His family practitioner has been the only one taking us seriously, but even he overlooked LD as a possibility, until now.
He has had the disease for 2 years without treatment, but has taken three 5 day course of steroids in that time for swelling and "allergic reactions." The past 6 months have been good for us except for vague learning issues, some speech problems, and possible fogginess. So, I'm not sure if he's actually exhibiting any symptoms at this time.
His blood tests through Quest were negative for Lyme, but my dr. said that his diagnosis is clinical and that the tests have only told us that he's not making any antibodies. We are about to start amoxycillin for 28 days beginning on Monday. I am looking for some supportive supplements to get him through that.
I'm not actually unhappy with our physician, but he has NEVER had a Lyme patient and I probably know as much as, if not more, than he does.
Thanks for any help!
Posts: 2 | From Dallas, Texas | Registered: Sep 2010
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janet thomas
Frequent Contributor (1K+ posts)
Member # 7122
posted
To find your local support group select a state from the link, they may have more knowledge of local doctors
If you go to www.canlyme.com and click on symptoms you will get some idea of the probability of Lyme.
BTW, I had 2 negative Lyme tests until I insisted on a western blot.
You may have to try other states.
-------------------- I am not a doctor and this is not medical advice but only my personal experience and opinion. Posts: 2001 | From NJ | Registered: Mar 2005
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We were visiting the North Woods of Wisconsin 2 months before my son had the disseminated EM rash, joint swelling, and pain. Then in the next 9 months had blurred vision, headaches, joint and leg pain/swelling, great fatigue, and sleepiness. Not to mention the learning problems he's had. He is also so heat and sun sensitive that he will flush, vomit, and be wiped out for a good part of the day after exposure. He cannot play like most little boys.
It was the Children's ER that first gave him the steroids, then in those next 9 months, yes, it was this same dr. (who is beside himself, btw, that he missed this when everything fell into place after putting Lyme in the picture) who gave him steroids each time he swelled up. Then, there was the rheumatologist that missed it, and the the pediatrician before this one. My son's current dr. never saw his rash until my nephew developed the same one and tested positive for Lyme. I took his pictures and my son's pictures from 2 years before and emailed it. The pictures spoke for themselves.
I'll have to check which tests they performed. I thought it was the Western Blot. I'm kind of on a crash course here and a lot of terms are slurring together.
Posts: 2 | From Dallas, Texas | Registered: Sep 2010
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littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
Hi, I also have LD. I was diagnosed in April. I haven't received much help from any doctors except the antibiotics which were taken for about 20 days. I did receive some advice and did lots of research through the postings here.
I was advised to get some colloidal silver to have build my immune system. I have done that and am feeling better. In addition I was introduced to mangosteen juice. I helps to clear my eyes. I don't know what I would do without it.
-------------------- cjfrank
IGG Western Blot - negative IGG Bands Detected - p18 IGM Western Blot - positive IGM Bands Detected - p23, p41 Posts: 49 | From Maine | Registered: Jul 2010
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posted
fease...please repost your story in Medical Questions where you will get many more replies and suggestions.
I'll be back later with some names of drs. There aren't many in TX who will treat.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
posted
I sent you a pm.
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
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