posted
I am a 30 year old momma of 3! Just started the "journey" of being diagnosed with MS. Symptoms are pretty classic muscle soreness, extreme fatigue, tingling/numbness in arms and legs, dizziness, night sweats, loss of concentration, etc. I am/was a very active runner, running at least 4 miles a day, now I can barely walk 2 miles a day.
My family lives in central IL and I know that I've had ticks on me before, but not sure about the rash. We live in a wooded area and ticks are all over. My mom works at a vet in our area and they see dogs come in all the time that test positive for LD.
I'm having trouble with my dr returning my calls and answering questions so I've started scanning the internet to try and find my own answers. I came across a few LD websites and am becoming obsessed with the idea that I may have a treatable infection as opposed to MS.
I haven't talked to my dr about LD since she hasn't returned my call but I'm judging by her lack of enthusiasm to call back that she's not going to be very excited about my self-diagnosis.
I have no idea what I'm getting into with an LLMD as far as cost is concerned. Cost would be an issue but if we're talking about the rest of my life than money would be a secondary concern!
I've been glued to the message boards reading people's stories and what they've been through. It's so heart-breaking and although, I'm just beginning this journey, I can see myself in many of the stories.
My mother in law owns an herbal store and I would be very interested in hearing if anyone has successfully treated LD with herbal anti-microbials instead of abx.
My head is spinning with too many questions, and too few answers, I need to hunker down for a long road and pace myself
If my story turns out to have a positive LD diagnosis, I guarantee I'll be one of the biggest advocates you have!! I have a neighbor who, oddly enough, was diagnosed with MS 2 months ago and I'm already trying to convince her to get a Lyme test. Thank you so much for any info you can pass on to help me take the next step! Blessings!
-------------------- No tick bite/rash sick Nov '09 diagnosed Mar '11 Doxy/Zithro LOTS of supplements
Psalm 62:5b He is my rock and my salvation. He is my defender, I WILL NOT BE DEFEATED! Posts: 127 | From Illinois | Registered: Sep 2010
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littlebit27
Frequent Contributor (1K+ posts)
Member # 24477
posted
I sent you a PM. Hope you start feeling better soon!
posted
I would recommend you get an igenix western blot test done first, find an llmd have the blood test and then you will know for sure if your on the right track !
make sure you get the igenix western blot some of the others leave out a few critical bands and their tests are not as accurate !
Posts: 294 | From sw chicago suburbs | Registered: Apr 2007
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Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
posted
I sent you a PM also.
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You said: " . . . My mother in law owns an herbal store and I would be very interested in hearing if anyone has successfully treated LD with herbal anti-microbials instead of abx. . . ." (end quote)
While supplements are very important, they are usually best as support measures.
I recommend an ILADS-educated LLMD - however there are also some ILADS-educated LL NDs (naturopathic doctors) that can help. Most will also insist upon certain antibiotics, though.
You definitely want an experienced LL doctor who has treated hundreds of people - with successful results. You need a LL doctor who is current with research and keeps in touch with other LL doctors, too.
Topic: How to find a LL ND (naturopathic doctor), acupuncturist, etc.
Includes how to find an ILADS-educated LL ND, an Acupuncturist, a doctor of Oriental Medicine (O.M.D.), or a doctor of Ayurvedic Medicine (D.Ay.), certified herbalists or nutritionists, etc.
Includes many articles and books on complementary / integrative methods - & RIFE links. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Lyme is not the only infection that can cause MS. There are other tick-borne infections (babesia, bartonella) and also other chronic stealth infections such as Cpn (Chlamydia Pneumonia).
Be sure to see the MS references in the Handbook at this site:
Chlamydia pneumoniae-specific intrathecal oligoclonal antibody response predominantly detected in subset of multiple sclerosis
J Neurovirol. 2010 Jan 6.
==================================
In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:
MAKING THE MOST OF YOUR LLMD VISIT -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- As you are in central Illinois, you might ask for a very good LLMD in central Missouri (Dr. C). -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
the one in mo is the best in the business imho awesome doctor !
Posts: 294 | From sw chicago suburbs | Registered: Apr 2007
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pmerv
Frequent Contributor (1K+ posts)
Member # 1504
posted
Please consider joining your online state group to get help with local resources. The URL below is not your state group but will tell you how to find yours. http://health.groups.yahoo.com/group/statenamelyme
-------------------- Phyllis Mervine LymeDisease.org Posts: 1808 | From Ukiah, California, USA | Registered: Aug 2001
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