Have been diagnosed for 6 years,ago now at my personal low. Due to sensitization to all adhesives(making it kinda tough fo central lines.I beleive my LLmd provider is top notch we just cant get past the I feel almost human for two monts to dropping 35# of muscle and feeling like I have arthritis in every joint.if I cant get off this roller coster I want off period.
Wetlimey
-------------------- God help us Posts: 2 | From West Coast | Registered: Oct 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- For what state are you looking for a LLMD, California, Oregon or Washington? There are on LLMDs in Oregon, so I hope either to its north or south.
Be sure to contact the local lyme support groups for suggestions - and someone should be along with a PM for you.
California Lyme Disease Association (CALDA) is a non-profit corporation acting as the central voice for all tick-borne disease issues. An excellent website for anyone in any state.
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Although there are no LLMDs in Oregon, there are a couple LL ND (naturopathic doctors) but most patients go out of state for treatment.
Support Group finder -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
posted
Hi, Wetlimey--Hi, we are not able to send you any private messages because you need to activate a setting first.
Go to top of page and click on My Profile, then click on Edit Profile, look at the bottom left side and you will see "Enable Private Messaging", check that block. This will allow you to receive private messages from anyone.
Also, if done correctly, you should see an icon to the right of your screen name on the board, of an envelope with 2 people standing next to it. This will show that others can click on "your" envelope and send you a private message.
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I believe many cases if not all of ALS is Lyme.
Personally I have no trouble believing- esp when I read articles like this and compare to Syphilis.
While Syphilis does not seem to be as virulent---it does -as another spirochete - exhibit fondness for the face/hands/feet.
It may take a year or more of careful treatment to make change...Don't give up.
Talk to others to see what is working for them...
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
Why not go for a groshong catheter? My LLMD said the dressing is needed temporarily. I am not 100% sure of that but it could be something to pursue.
Posts: 747 | From Utah | Registered: Apr 2010
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