posted
Hi people. I am a 32 year old male living in NH and am requesting a LLMD Referral in the NH/MA Area. It has recently been suspected that my long standing and progressive symtpoms may be a result of Lymes. Although I have been tested twice in the past couple years, I may be one who has received false negatives and requires further testing.
My symptoms are vast and most are random. All vary in intensity and duration. The most debilitating of these symtpoms is Fatigue, which ranges from general malaise, to debilitating fatigue where i cant even get out of my own way. Other symptoms include:
Numbness/Tingling in Fingertips, Hands, Scalp Trouble Breathing (with or w/o excercise) Muscle Weakness Visual Halluciations (polyopsia) - Trails Light sensitivity Irritibility Itchy/Picky skin facial twitches (eyelids) shakey hands Anxiety GERD (treated through surgery) Heart palpitations Abdonimal pain Chest Pain Forgetfullnes Disorientation Brain Fog Memory Loss (mostly short term) Temperature Fluctuation (never comfortable) Cant Concentrate OCD Mood Swings Sleep Disturbances (cant sleep, frequent waking, wake up early) frequent urination (cant hold it even for a few minutes) The list goes on....
ALL symptoms worsen greatly with alcohol use, lack of sleep, during allergy season
Have been diagnosed with Sleep Apnea (currently controlled, mostly), Candidiasis (treatment provided no releif of symptoms), Anxiety disorder (medications made symptoms worse). I have been tested for and received negative results on just about every test you can think of from Vitamin Deficiencies, to Allergies to MRI's, EEG's, Halter Monitor, Sleep studies, blood work, etc etc etc. I have had surgeries (For stomach - Acid Reflux, UPPP - to help w/ Apnae), treatment trials, seen a million doctors and NONE have offered a single bit of releif. Meanwhile i continue to feel awful and each day my symptoms intensify.
I take care of myself for the most part, get decent excercise when energy permits and eat well. Despite the hell that i've been trhoguh with my health in the past decade, i've retained a pretty positive outlook on life and remain hopeful that i WILL find the reason for my ailments. I fear that some or all of this damage is irreversible and that scares me more than anything.
Please help. Thank You.
Posts: 47 | From NH | Registered: Oct 2010
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I highly suggest you post your symptoms and story on the Medical Questions sections
to get more feedback from more people on that.
Leave the post for seeking a doctor here. I wil PM you. Others will be along too.
If you do have tickborne diseases you will be catapulted into an intense learning curve.
We should have a lyme literate practioner but we must also (due to the state of ignorance and inadequate research)learn what we must do for ourselves ...in cooperation with a practioner.
all the best...
-------------------- Not everything in life that can be counted counts and not every thing that counts can be counted...Albert Einstein Posts: 208 | From Northeast | Registered: Aug 2010
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Nancy2
Frequent Contributor (1K+ posts)
Member # 95
posted
PM Sent!
Posts: 1487 | From New England | Registered: Oct 2000
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Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
posted
Welcome to Lymenet! We are happy to have you. I sent you a private message (pm), click on the flashing envelope.
Also, check out our great "Medical Questions" forum where you can ask all the questions you might have and our wonderful, knowledgeable members will answer them. Just read some of the threads and you'll see just how informative they are!
There is also the ``Search'' feature at the top of the page where you can enter the subject you are wanting info on and all the threads on that subject will appear. This is a great way for you to learn, research and gather the information you are interested in, it's just at your fingertips!
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
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posted
It seems like yesterday i posted this. and i'm still in dire straights with my health. 1.5 years of treating with Abx, Herbs, supps, blah blah and am worse, not better.
I called on a couple of the doctors recommended by you folks from this post. Siciliano, the one you recommended charges $600 for a visit. You gave him a rave review, but i see your are not accepting PM's due to your battle with Lyme.
I'm debating breaking the bank for treatment, but your status makes me concerned. Can you please reply back, if you are able, and give me some insight into yoru experience with this doc? It would be so very much appreciated.
Thank you everyone. i hope you all find yourself on the path to recovery and are keeping the faith.
love and light.
Posts: 47 | From NH | Registered: Oct 2010
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
Your symptoms match up pretty well with my daughers before she started treatment for lyme and babesia.
Treating this disease becomes expensive fast. $600 is just the start.
My daugher has never tested positive under CDC standards so don't worry about having a negative test. Request the band readings in advance or labs like quest and labcorp won't provide them.
It's amazing there is a controversy to this insidious disease and I've found it easiest to show a couple of u tube video's on the controversy.
He is a saint and I show this to help illustrate how MD's have been prosecuted so normal MD's shy away from doing anything but following the flawed IDSA guidelines.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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