posted
Hi everyone. I'm looking for a good LLMD on the west coast. I've been to Dr. H in CA and Dr. K... In fact I've been seeing Dr. K for about 2 years and have seen little to no improvement.
Does anyone know of any other good LLMD's? I'm actually willing to travel anywhere if it means I can see some kind of improvement.
I don't have a lot of physical symptoms, mostly just psychological, like confusion, bad memory, anxiety, depression, not coordinated, mood swings, hard time comprehending, inability to focus, general inability to think, yada yada.
Thanks everyone in advance!
Troy
Posts: 30 | From Las Vegas | Registered: Mar 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Turn the Corner Foundation - Find Lyme Literate Medical Help
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From what I've read of his work, Dr. K certainly seems thorough in the various aspects of his suggested treatments and I'm not sure anyone else has the range of things he considers - but each doctor does have their own eyes, ears, brain and set of experiences . . . so it does make sense to get another opinion. You might consider someone here:
Near Seattle, Bastyr Naturopathic University Clinic also may have interns educated about lyme. Even if not for primary care, they may work well for adjunct treatment.
One of the NDs in the previous link is (or was) a professor there.
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There are no LLMDs in Oregon as the IDSA is harshly against doctors in Oregon learning the facts about lyme and other tick-borne infections.
However, there are couple good ILADS-educated LL NDs (naturopathic doctors) who can be located through:
California Lyme Disease Association (CALDA) -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
- Have you been assessed for Cpn? HHV-6? XMRV / HGRV ? More here about those:
In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about: ----------
Topic: How to find an ILADS-educated lyme literate (LL) professionals in these areas:
Naturopathic doctor (ND); Acupuncturist (L. Ac.), a doctor of Oriental Medicine (O.M.D.), or a doctor of Ayurvedic Medicine (D.Ay.), certified herbalists or nutritionists, . . .
. . . Holistic MDs, and also Doctors of Osteopath (DO) and Doctors of Chiropractic (DC), etc.
** You can compare many LLMDs and LL ND's articles and books - Includes many professional links, articles and books on complementary / integrative methods - & RIFE links -- all by LL authors.
Also included are basic links explaining the principles of herbal medicine.
BODY WORK considerations (geared to lyme patients) are discussed; with links. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Wow, thank you guys! You are awesome! I posted this last night and didn't expect to get so many responses so soon
Keebler -----------
quote:Have you been assessed for Cpn? HHV-6? XMRV / HGRV ? More here about those:
I was tested for HHV-6 which I had in addition to Bart and Babs, but the other ones are new to me - I've never heard about them before! I was diagnosed with KPU as well but I've taken care of that for the most part I believe.
And not to get down on Dr. K; he's an excellent doctor, but for whatever reason I haven't had much improvement (??). Not really sure why. He has me on Mepron and Azithro which I heard is a good 1-2 punch at the Lyme and I think Babesia?
Posts: 30 | From Las Vegas | Registered: Mar 2008
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Keebler
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posted
- Oh, I perfectly understand your need to find a new doctor if you aren't making the kind of progress expected from your doctor's input and your hard work, etc.
As for KPU, that might need on-going attention but I'm more familiar with other kinds of porphyria which needs constant mindfulness but that really just becomes a way of life with good health habits of a specific nature.
You might want to take a look at this: ------------------------
Includes links from GiGi, Dr. K, and others about KPU / HPU (mauve factor) . . .
& links from TerryK regarding METHYLATION issues -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
- You might want to find a doctor who is familiar with this issue. Just a bit from my notes - but the information is a few years' old, so you'd want an update, for sure. -----------------------
(HLA DR 14-5-52B)
* HLA-DR
I don't have details about HLA-DR and HLA-DQ but you will want to search that out.
Do a cross search of these terms at Google: HLA-DR "chronic neurotoxins"
* MSH: (MSH is a hypothalamic neuroregulatory/cytokine regulatory/mucus membrane regulatory hormone.) In short: MSH stands for "MELANOCYTE-STIMULATING HORMONE".
* MMP-9 is activated by cytokine effect
* PORPHYRINS
* The HLA DR by PCR is a typing of immune response genes, that can show individual susceptibility to particular neurotoxins.
Dr. S's tests can be ordered by your physician from Esoterix Labs. He must set up an account with them, you cannot do it:
Esoterix Labs, Inc. 7540 Louis Pasteur, Suite 200 San Antonio, TX 78229-4008 1-800-661-4118
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