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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » LLMD in Montana?

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Author Topic: LLMD in Montana?
BarrelKat
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Member # 30329

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I have been battling Lyme for over 20 years. My symptoms have suddenly gotten worse, and recently I was diagnosed with fibromyalgia due to sudden bouts of high BP, onset of early menopause, sudden chronic IBS, among other things. Although I have fought the FM diagnosis for 15 years, I gave in as it seemed to make sense. What I was hearing was Lyme leads to FM.

The more I research the more I wonder. Is this just Lyme once again appearing as FM? I would really like to find a LLMD and once and for all be treated as a Lyme patient.

I am also concerned that despite being told that Lyme would not cross the placenta, that there is a strong possibility that my children could have Lyme.

Are there any LLMD's in Montana? I would be willing to travel, but I am not sure insurance will cover a doctor out of state. I am a female, 39, was bitten by a tick in Texas in 1990 and believe that's when my Lyme began. (was intially misdiagnosed as Scarletina.)

Sorry for the long post.

Posts: 3 | From Montana | Registered: Jan 2011  |  IP: Logged | Report this post to a Moderator
Keebler
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Not sure about a LLMD, however, I am sending you the link for a LL ND (naturopathic doctor) who is ILADS educated - in Bozeman.

I hope you get some other good specific suggestions, in the meantime, these links may help guide your search:
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http://www.lymenet.org/SupportGroups/

Find your area Lyme SUPPORT GROUPS through LymeNet

=======================

* http://www.turnthecorner.org

TURN THE CORNER is dedicated to the support of research, education, awareness and innovative treatments for Lyme disease and other tick-borne diseases.

* http://www.turnthecorner.org/content/selection-proper-physicians

Turn the Corner Foundation - Find Lyme Literate Medical Help

========================

http://www.lymedisease.org/

California - Lyme Disease Association (CALDA) is a non-profit corporation acting as the central voice for all tick-borne disease issues. An excellent website for anyone in any state.
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Keebler
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Chronic IBS ? Have you considered celiac (problems metabolizing the protein of gluten in wheat, rye, barley, spelt) ?

Many with lyme do so much better on a gluten-free diet that many LLMD suggest it. Some, however, may have a genetic celiac that has gone undetected until lyme triggered it.

For other who may not have celiac, gluten can still pose problems when lyme and "leaky gut" issue take over.

More at:

www.celiac.com

CELIAC.com

===========================

http://www.drweil.com/drw/u/QAA361058/what-is-leaky-gut.html

What is "Leaky Gut" ? - by Andrew Weil, MD.
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Keebler
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www.ilads.org

ILADS - International Lyme & Associated Diseases Society

============================

www.canlyme.com/seronegreasons.html

(27) REASONS WHY A SERONEGATIVE TEST RESULT MIGHT OCCUR

=====================

Dr C's Western Blot explanation is discussed here:

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042077#000000

and

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042077

==============================

http://cassia.org/checklist.htm

Symptom checklist for lyme.

======================

http://cassia.org/essay.htm

When to Suspect Lyme - by John D. Bleiweiss, M.D.

======================

This explains WHY you need an ILADS doctor:

www.clinicaladvisor.com/Controversy-continues-to-fuel-the-Lyme-War/article/117160/

CONTROVERSY CONTINUES TO FUEL THE "LYME WAR"

=======================

Also why you need an ILADS-educated doctor:
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http://www.borelioza.org/materialy_lyme/the_complexities_of_lyme_disease.pdf

COMPLEXITIES OF LYME DISEASE - Tom Grier

. . . The division time of Borrelia burgdorferi is very long. Most other pathogens such as Streptococcus, or Staphylococcus, only take 20 minutes to double, the doubling time of Borrelia burgdorferi is usually estimated to be 12-24 hours.

Since most antibiotics are cell wall agent inhibitors, they can only kill bacteria when the bacteria begins to divide and form new cell wall.(35,59-62)

This means: Since most antibiotics can only kill bacteria when they are dividing, a slow doubling time means less lethal exposure to antibiotics.

Most bacteria are killed in 10-14 days of antibiotic. To get the same amount of lethal exposure during new cell wall formation of a Lyme spirochete, the antibiotic would have to be present 24 hours a day for 1 year and six months! . . . .

(Thanks to TerryK for finding that quote)

==============================

http://tinyurl.com/5crsjv

Cure Unknown: Inside the Lyme Epidemic (2008) - by Pamela Weintraub

This details what an entire family went through. Having this knowledge of their journey will help others to get better, faster treatment.

http://www.cureunknown.com

==========================

http://www.underourskin.com

Documentary: UNDER OUR SKIN

DVD can be obtained through the site - or maybe borrowed from local support groups.

===========================

In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about:
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http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=069911#000000

TIMACA posted 03 August, 2008

I would encourage EVERY person who has received a lyme diagnosis to get the following tests.

- at link.

===============================

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=020605

MAKING THE MOST OF YOUR LLMD VISIT
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Keebler
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In your other post, you mention light and noise sensitivities.
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ALL EARS. Specifically for LYME patients - lots of details about ears and what can help:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=065801

Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS

====================

You also mention "chemical sensitivities" - Very common with lyme. Links here explain a lot about that, especially the MCS links.
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http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/91842?

PORPHYRIA Thread - along with details about KPU/HPU (Mauve factor)
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Keebler
Honored Contributor (25K+ posts)
Member # 12673

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I hope you find a good lyme literate doctor soon.

Specific medical questions can be posted in the Medical Forum. I just wanted to be sure you had some basic links to start with and some specifics to symptoms that you mentioned.

Good luck.
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