posted
I've been searching for a very long time for a Lyme Dr. within an acceptable driving distance. But finding anyone who can actualy give me first hand info on any South Florida Lyme Dr.'s has been practicaly impossible.
I would really like to know that the Dr. has actualy treated people sucessfully and with compassion. I was given two names yesterday through the LDA referral service and wanted to know if anyone has any knowledge about them?
DR. P DR. C -- these 2 are LDA members
DR. H -- can't remember where his name came from.
I'd really appreciate help here. I need to get to a Dr. asap as I am at the end of my rope. I've been sick for 10yrs w/ symptoms that didn't all match my original disability and now it seems all this time it may have been Lyme.
Thank you, Lisa
** edited to remove cities, please see terms of use **
posted
Have you tried any support groups in FL? They tend to know the doctors in the state the best. Probably have to try several group contacts as some are into more alternative meds and others may have disbanded.
And there is an online yahoo group that you could join, doesn't seem very active, but maybe worth a try:
posted
Thank you Abxnomore for bumping my post up. I feel so lost and alone right now and continually seeing noone reply to my post just adds to the feeling of helplessness.
It meant alot that even though you couldn't help with the names you still tried to help with pushing up my post. If I told you I had tears in my eyes you might get an idea of how desperate I am.
I did try every support group listed for Florida and only got two responses and that was from the only two Fl. support groups left online. And one is barely active like lou mentioned.
I have even gone as far as sending a PM to every member on here that I could find in the past 13 months that are from South Florida.
I guess I can understand those from outside FL not helping, maybe they have enough on their own plate. However, what I am starting to really have a hard time with is others from Florida who can't give help to someone who is suffering the same way I'm sure they once were without a treating LLD.
I don't expect a BFF I just want someone who can give me first hand knowledge like: " hey I am seeing Dr. so & so and he is this or he is that" or "don't go to Dr. * his pages of praises that seemingly just appeared on ratemds are Bull----!" Unless there not then this is why I am out there searching and practically begging for help.
If I offended anyone with anything I've said I wasn't trying to. It's just that I find it unimaginable that anyone whose been through this hell wouldn't want to help a fellow sufferer. Especially if someone is coming to you directly asking for help. I could never keep such information to myself and the most important information is a good Lyme Dr.
Abxnomore & Lou thanks again for your replies, they are worth a lot. Lisa
Posts: 86 | From Fort Lauderdale, Florida | Registered: Sep 2010
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posted
I wish I could give you the information you want and need but I too ran into the same problem.
I know I would not be stopping in Sunrise, if that helps at all nor would I drive the 110 miles straight across the Alley.
Recently, thought a different website, I found a couple of local names. They seem to work with stealth infections and Lyme was listed.
It's so hard asking for some one's opinion on medical stuff. It really boils down to the relationship between you and who ever is treating you. If someone tells you they had a problem, it plants that idea in your head with the possibility of YOU having a problem.
I have gone in cold turkey, not knowing a thing, having an open mind and trusting my gut and praying this would work.
As with any relationship, I know I probably won't click right away and that's okay.
Have you considered calling an office you are considering for treatment and sort of "interview" them?
Most front offices are vicious gate keepers and can be rough to navigate around. Still, maybe they could call you back when the office is less busy, just a thought.
There is a woman I met through my Veterinarian who successfully treated Lyme. Last I heard, she was so much better. I will try to send her a message and see if she can offer any suggestions. I do know, she did not treat here, she traveled out of state. Don't know about you but that isn't possible for me.
Sorry for the ramble...
Posts: 125 | From US | Registered: Jul 2009
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I sent you a private message with some information regarding lyme doctors in Florida.
Florida just doesn't have much in the way of good lyme doctors, so you don't have much of a choice.
Posts: 9931 | From Maryland | Registered: Dec 2007
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
PM sent
Posts: 3975 | From usa | Registered: Aug 2007
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posted
I just sent you a PM regarding Dr P.
Posts: 7 | From Clearwater, Florida | Registered: Apr 2007
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
Will PM you about my sister's Florida ILADS doctor.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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I just joined this and saw your post, I understand your pain and frustration, I saw Dr. C in FL, don't know if he will be of any use to use, but the Sarasota Lyme Support group seems to be very active and they meet the 4th Tuesday of each month, look up Carol Fisch for more information.
T.
***edited out the name of the LLMD and the city***
Please do not post names or cities of LLMD's .. per Lymenet Rules..thank you.
posted
I see Dr. C in Tampa, so far so good. He listens to me and is open to my suggestions. I am starting to feel better!!
My sister may have pm'd you. She is on here more than me. She and both her boys have Lyme. She is in Ohio.
Posts: 8 | From tampa bay, florida | Registered: Dec 2010
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posted
I see Dr. C that ktbond007 sees too. He is pretty good. Made improvements on his IV protocol, but unfortunately he only keeps most patients on it for 3 months, then stops you. I was doing better while on IV.
Posts: 453 | From TX | Registered: Aug 2008
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posted
Does anyone want to update this thread? Virtualchk, where did you end up going? I am in S Florida and now have the same questions as you, for early Lyme.
Posts: 2 | From Port Charlotte FL | Registered: May 2012
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