posted
I need Dr. info also please for somewhere in the SE I am in SC but don't think there is anyone here so willing to travel a little.
I don't know if this is a possible thing for you to know about a real "people person" doctor because I am so battered by the medical profession I can't keep it together anymore when talking to a Dr. Sounds stupid but can't help it.
Saw Dr. L and I couldn't handle his staff or him, I left crying and depressed for weeks after every appointment and ended up stopping treatment and gave up.
I wanted to try again, can't escape the pain and symptoms no matter how hard I ignore them. I know I HAVE to get help.
Went to another one and had a major epileptic type reaction to a med he gave me and he acted like it was MY fault, just as other docs before him.
He went into defense mode instead of trying to help me. So went back in my shell.
Ready to try again but need help finding someone who can work with someone un-trusting of doctors and sensitive. I sound like an idiot I know!!!
I am dying and I feel if it isn't soon that I get help, I will give up again and just wait for death as I have been (which never seems to come, just more pain)!!
Also I have No insurance and can't work so cost is a consideration. I have done some saving since cant shop anymore. Guess there is the lemonade :|
Posts: 50 | From Charleston, SC | Registered: Jan 2009
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
I am so sorry to hear you are feeling so poorly and are feeling so down. I do hope soon you will be feeling better.
I am also sorry to hear you've been to more than one LLMD and have not been satisfied. That is not normal. It happens, but it is rare.
I also totally appreciate your beaten down feeling (trauma) as I have been there myself and have watched others go through it.
It is absolutely shameful that the bad docs have not been hog tied and tossed off a bridge for the harm and mental pain they inflict on patients.
So sorry I have no suggestions for a doc who would be better than the one you mentioned (if we are thinking of the same doc).
I also hesitate to send someone who has not been satisfied with basically the best we have to offer to someone else at this point, as it is probably going to be a waste of your time and precious money and their time and energy given your history.
Is it possible for you to separate (in your mind) the "business" of Lyme from the emotional Lyme you are experiencing?
I really don't like seeing you so down. More or different docs, no matter how good they are at this point, may never suit you when your perspective is negatively being affected.
Have you tried finding a doc locally that would work from Dr. B's protocols?
Or perhaps a mental health professional near by who could maybe address your problems (post traumatic stress?) and stabilize you and your moods/perceptions before you attempt to go to another LLMD?
Often you can look for new docs that are advertising in your local papers who will accept new patients and you can approach them for assistance. You might find that women docs are sometimes more "gentle" than men.
The link below has some suggestions for finding a doc too. Hope it helps!
posted
I see you are one of those who blames me too. You could have just said nothing.
I have seen the one and then saw a local doc who said he treats Lyme but is actually an environmental med doc.
ALSO IT IS NOT MY FAULT if he didn't see me after I had a severe adverse reaction to his meds!!! You are just like them.
Posts: 50 | From Charleston, SC | Registered: Jan 2009
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Catnippy,
I am sorry you feel that way. I wasn't trying to "blame you" and I am sorry you took it that way.
I am only trying to approach this in a manner where YOU may be more comfortable getting help without having so much stress and heartache wrapped up in it.
I know that the docs ways are not going to change, so if you need help, YOU and only YOU will need to work with what is available.
I'm sorry, it is really totally up to YOU to make the necessary changes. Or, (not advised) you can decide not to change and be miserable like I was for so many years.
I am sincerely trying to help you by sharing the lessons I learned through the mistakes I made.
This, unfortunately, is basically a situation where you need to, as my kid would say, "suck it up buttercup".
To get medical care, which you certainly deserve, you may need to put on your big girl pants and tackle the problem from any direction possible. I hope it works for you!
I wish you peace and better health in the new year.
posted
cat .. I sent you info on NC. Hope that helps.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
catnippy - it is hard to deal with docs - who don't take us seriously or treat us with "basic human treatment".
But I had to learn a hard lesson when my dad was sick. Some docs are major idiots and A**. One in particular yelled at me because I was upset my dad had fallen, draining tube fell out, and no one did anything. He ripped me from here to there.
I had to backdown. He was THE BEST and I in hindsight wish I had approached it differently and not set him off -so my dad could get good care.
How does this apply to you? My message to you is -I have had to learn to work with docs. They may be pushy, no empathy, or defensive. I get what I need from them and go on.
I would not take abuse, but I have learned to deal with their idiosyncrasies. Try not to take it personally and figure they are that way with everyone.
And when I find a good one - I tell them how much I appreciate them.
I am sorry you are having a rough time, we are all here to help you. Some replies may not be what you want to hear. But I would rather have people be honest with me and then I have the option to take or discard their opinion.
Hang in there. This is a rough time in your life and I pray it will get better soon for you.
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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posted
Lymetoo- God Bless you for your help, thank you! I am grateful you answered after the drama before that. Thank God I got a real answer from you, because I hide and ignore things if I get shot in the foot anymore (touch stove too many times, blah blah) and that's what almost happened again. Kind of what I wrote originally.
So thank you very much for one real human being whose response may have just saved me. _________________________________________________
What is it with you people? I told you about one doc that I purely did not mesh with and also did not feel was the best for me,
another that was so bad I am NOT sucking up for treatment when I had a reaction so severe my husband had to sit on me for six hours and then the doc says keep taking those same meds that caused that reaction and doesn't even want to see me?
WHAT doc tells you to take meds you just had a six hour seizure with? I will answer, incompetent one!! Geeze!!
That is REASONABLE!! I have other that that had docs outside of Lyme that operated on my hips, then when those didnt help I was told by another doc from Duke the surgeon mutilated me and with a laugh (suck up to that seriously)?
I have to change? NO!! I have the right to look for a doc and ask for opinions from people for docs that have a brain and maybe just half a heart.
I get they hate spending time with patients and don't give a rats butt about me, but that is different than what I have been describing.
Incompetence. And these aren't even all of them. I was poisoned with excess cortisone by another doc and another doc put that in my disability papers.
Unfortunately I cant see him anymore, because he is all the way on other coast!! That dangerous doc told me cortisone is a natural occurring thing in my body that is completely safe and that the side effects are very rare and short lived,
he said he had never seen one side effect in 20 years and when I had a severe one where I couldn't walk and felt like was sitting in boiling oil and a burn victim for months, he did nothing to help me!! He wouldn't see me, blamed me and covered his A^^ in his records. With lies, claiming I got better every visit and I didn't.
This was before I found my own DX myself and was confirmed from Doc J with the Lyme positive test and tracing my symptoms and before I found out how bad cortisone is for Lyme Patients!!!
I guess I should change and let incompetent docs operate and screw me up further instead of looking for better help?
You DogandCats may have had a good doc you went off on, but I didn't.
I have a doc who I use for meds to help with symptoms. Completely incompetent but we get along (I understand to check everything behind him ) but he is a human being with a heart, understands I am in major pain, enough to want to help and listens when I tell him I had a reaction to a med and need something different so half a brain.
I just research the heck out of things then go in and tell him my problems and he gives me what I ask for, except he wont treat Lyme or even write it down. He is a reumy and write FM and CFS of course, even with my positive test and 3/4 of my family positive. Like I said half a brain.
I also have more neuroLyme and he has no idea what to do about the nerve and brain involvement and I need someone to help with that stuff because it is getting worse. I am just looking for one with the opposite pros and cons.
You two are judgmental and not nice. You can say "oh I care or try to help" But if someone says they are getting blamed for things I think blaming them more no matter how you word it is not the best thing to do.
I am done explaining myself. I really hope you don't do this again when someone says they have been battered, maybe you will just keep those "kindnesses" to yourselves. They don't need that KIND of help. And if they do who are you to judge that is the case.
It took me months to get up the nerve to try to find another doc and more months to actually post for help. I am shy about posting on the internet. Your "help" is what makes me shy. Not everyone finds it easy to put stuff out there in writing like this, ever think of that? That is why there are many people that just read and never post and never ask for the help they need. I thank you sarcastically for them too.
All you two did was hurt more and made it harder to even click the link to see if someone actually answered the actual question, not what you THINK should be answered.
I was specific on my needs on purpose, to see if I could get feedback that was specific ON DOCS not your opinions. That is why I posted here instead of general questions or "support" if that's what you want to call your posts.
That one person actually means it when they say they want to help and be supportive or they would have joined your party.
Believe me when I say not everyone has had the same experiences as you two, so quit assuming.
You know the saying right, about assuming? Well a subscribe to the first half.
Posts: 50 | From Charleston, SC | Registered: Jan 2009
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
I am sorry. In my effort to help, I made it worse.
That was not my intent and hope you will accept my apologies.
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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