posted
My 83 yr old dad who has LD and company is quickly losing his vision. He's a stubborn old man and in the 6 years since getting this illness has only self-treated with salt & vit C. He said at his age, he didn't want to spend years sick from abx therapy. I understand his thinking in many ways.
Anyway, he was diagnosed with wet macular degeneration some time back, also now cataracts -his eyes are going down quickly. Now he has the AMD in both eyes (was just one). He is scheduled for cataract surgery tomorrow. The pre-op appt today is not encouraging and things are going bad quickly according to the eye doc.
Due to the BS with this illness, my dad often chooses not to disclose the LD; crazy, but it is what it is. He had quadruple bypass 2 years ago and never breathed a word about the LD.
Anyway, I will be able to be with him tomorrow and will be dealing with his eye surgeon. I want to tell the surgeon about the LD, ask him to read up and give him a name or 2 of LL eye docs to see if he would be willing to consult with them; worth a try. We are in WA State, but assume anywhere in the US would be fine, assuming this doc might be willing to contact them.
Appreciate any names you can send me. Thanks tons. I hate this disease with a passion. TS
Posts: 566 | From West Coast | Registered: May 2008
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posted
Thanks Lymetoo. I will check it out, though you said he may no longer be practicing, but gone to the research side of things; but, I'll double check.
I did get a name from Wildcondor a few weeks ago, so am looking into that as well. I just hope these local docs will be willing to consider what role LD may or may not be playing. I have an email into the local docs explaining the LD situation and gave them one name to consult with; now I pray they actually will. BUT PLEASE SEND ME ANY OTHER NAMES, PLEASE!
I just hope it's not too little too late, ugh. My vision is really struggling as well, very blurry. I saw an ophthamologist (not at all LL) about 3-4 months ago, told things were "normal" then. But, things have progressively gotten worse vision-wise for me.
This illness feels never-ending...thanks again Lt.
On top of this, my good "Lyme friend" is struggling so terribly. Her and all 4 of her sons (got LD in-utero) are all on IV. Been battling hard for 3 years with marginal progress. Now insurance is starting to deny meds, husband has one foot out the door - the stress is destroying the family, need to sell house due to $ issues etc etc. This illness is unrelenting.
Posts: 566 | From West Coast | Registered: May 2008
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
PM sent with name.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
If your father won't go to the best LLMD he can find and get treated, it's all a moot point. I mean there is not a tremendous amount an LL opthalmologist can do, unless he is willing to do as much as he can treatment-wise to save his sight. But maybe a good LL opthalmologist can talk some sense into him!
I know of a great one in NY state. Probably you already got the info.
Posts: 3771 | From around | Registered: Mar 2008
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