posted
Hey everybody, Since my visit with Dr. J wasn't a good experience. What are your thoughts on Dr. S in PA? Thanks again for all your help and input!! Binebee P.s. I am always running a light fever any ideas why and I am shaking andy heart is going fast and I feel like I am going crazy in my head.
**edited city of LLMD.. per LN rules**
[ 05-26-2012, 02:57 PM: Message edited by: Lymetoo ]
Posts: 8 | From Atlanta | Registered: May 2012
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I understand Dr. S. is good. However, I suggest you see the doctor I gave you rather than Dr. S.
Perhaps reread my private message to you regarding the doctor's credentials and all those recommending her.
You don't want to select a doctor out of impatience.
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
posted
Tried to get in with her. Very long wait!! Guess will make appointment anyway but can see dr s in pa on Tuesday. Getting sicker and sicker and and on top of that I was told today the if it says igm on your western blot that it is not Lyme. Can't believe that as sick as I am!!! Thanks a lot !!
Posts: 8 | From Atlanta | Registered: May 2012
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
There is always a long wait to see a good lyme doctor.
What you were told about the IgM on Western Blot is not true. Whether you are positive on IgG or IgM, if you have lyme symptoms, it indicates that you have lyme.
"Because Borrelia burgdorferi is a chronic persistent infection that may last for decades, you would think patients with chronic symptoms would have positive IgG Western blots.
But actually, more IgM blots are positive in chronic borreliosis than IgG. Every time Borrelia burgdorferi reproduces itself, it may stimulate the immune system to form new IgM antibodies.
Some patients have both IgG and IgM blots positive. But if either the IgG or IgM blot is positive, overall it is a positive result.
Response to antibiotics is the same if either is positive, or both."
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
posted
Your are right. I saw Dr J out of impatience. But I am so sick. And I need treatment. I am wasting away more every day and my kids are very worried about me. I made an appointment with Dr. S in DC but it is not till end of July i would love to see her mote than anybody. I also could see dr. C in MO on june 11. Dr. S in PA I could see him on Tuesday. His website is very simple and they don't even have email. And I don't know what make of that. I was told he that he is a victem too. He was recommended by a former ilads lady. She sees him herself. She is still on ab and will be for the rest of her life, she says. What do you think of dr. C in Mo? I just really need help!!!! Because I am so sick!! Thanks a lot guys!!
**edited name of LLMD per Lymenet rules**
[ 05-27-2012, 08:19 PM: Message edited by: Lymetoo ]
Posts: 8 | From Atlanta | Registered: May 2012
| IP: Logged |
quote:Originally posted by Binebee: Your are right. I saw Dr J out of impatience. But I am so sick. And I need treatment. I am wasting away more every day and my kids are very worried about me. I made an appointment with Dr. S in DC but it is not till end of July i would love to see her mote than anybody. I also could see dr. C in MO on june 11. Dr. S in PA I could see him on Tuesday. His website is very simple and they don't even have email. And I don't know what make of that. I was told he that he is a victem too. He was recommended by a former ilads lady. She sees him herself. She is still on ab and will be for the rest of her life, she says. What do you think of dr. C in Mo? I just really need help!!!! Because I am so sick!! Thanks a lot guys!!
P.s. I also have huge candia infection which, dr. J did Not do anything about. I have diflucan and nystatin in the house from my kids, but stomach is so messed up that I dont know if it will be able to handle it. I have to throw up every day and it could be from candia, but i dont know. Also I heard that can herx from treating candia. Is that true? I hate that I wasted all that money with dr. J.
[ 05-27-2012, 08:19 PM: Message edited by: Lymetoo ]
Posts: 8 | From Atlanta | Registered: May 2012
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Dr. C in MO is good. You could go to him until you can get in with the doc you really want.
The symptoms you have named are all common with lyme patients. So you are suffering from lyme or perhaps herxing from being on lyme treatment (if you are on any lyme treatment), or both.
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
quote:Originally posted by Binebee: Your are right. I saw Dr J out of impatience. But I am so sick. And I need treatment. I am wasting away more every day and my kids are very worried about me. I made an appointment with Dr. S in DC but it is not till end of July i would love to see her mote than anybody. I also could see dr. C in MO on june 11. Dr. S in PA I could see him on Tuesday. His website is very simple and they don't even have email. And I don't know what make of that. I was told he that he is a victem too. He was recommended by a former ilads lady. She sees him herself. She is still on ab and will be for the rest of her life, she says. What do you think of dr. C in Mo? I just really need help!!!! Because I am so sick!! Thanks a lot guys!!
P.s. I also have huge candia infection which, dr. J did Not do anything about. I have diflucan and nystatin in the house from my kids, but stomach is so messed up that I dont know if it will be able to handle it. I have to throw up every day and it could be from candia, but i dont know. Also I heard that can herx from treating candia. Is that true? I hate that I wasted all that money with dr. J.
Your not alone in wasting time with some Lame Duck. Save your energy, don't look back and keep looking & moving foward. It will get better. As TF said go to who you can and work your way up. It's what most all of us have had to do.
PM sent.
Get on them lists & cancellation lists and keep calling and emailing them until you get in with someone. Never quit & Don't give up! It will get better, so hang in there.
CJ..
-------------------- Let us not become weary in doing good,for at the proper time we will reap a harvest if we do not give up. -- Posts: 247 | From HOME | Registered: Oct 2011
| IP: Logged |
posted
Binebee, Per Our phone conversation. "In my honset opinion" in your case, Dr.J Was right on the money. He is infact treating you correct.
If I were in your shoes, I would do as he told you for now, because anyone that is a competent LLMD will tell the same thing Dr.J has.
If you decide to use another doctor and not take this advise, make sure they clear the (candida or C-Diff) before they start ABX treatment on you.
You don't want to get worse at this point, you want to get better.
Prayers, CJ
[ 05-28-2012, 12:26 PM: Message edited by: Cracker Jack ]
-------------------- Let us not become weary in doing good,for at the proper time we will reap a harvest if we do not give up. -- Posts: 247 | From HOME | Registered: Oct 2011
| IP: Logged |
posted
I would like information on Dr. S. I found a llmd, and have been having moderate herx. I would like a second opinion. I know enough to be dangerous, and have experienced enough herxes to get that this is serious.
Will a llmd, do a second opinion visit if I'm being treated by another llmd? and Can you pm the name? I am on NE coast and am well enough sometimes for a car ride. I am also looking for ll counselor. They are rarer than docs. I haven't found one. Lots of psych symptoms!
Thank you for any help.
And, thank you for the many posts. By now, I'd be really sick if the internet wasn't available to me. Thank you for helping people like me, My gratitude is hard to put in words. Thank you
Posts: 9 | From Anytown, usa, closer to NE states | Registered: Oct 2011
| IP: Logged |
-------------------- Let us not become weary in doing good,for at the proper time we will reap a harvest if we do not give up. -- Posts: 247 | From HOME | Registered: Oct 2011
| IP: Logged |
Maybe you don't need one in Seeking now, but will need this info to post on the other forums.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Katie,
I sent you a private message about Dr S in PA.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[hi]](graemlins/hi.gif)
Printer-friendly view of this topic