posted
I am 23 years old, and I have had lyme disease for 18 years. I was finally diagnosed correctly in November 2002. My family and I drove six hours one way to see a doctor for over a year, but the results were negative. I am looking for a doctor closer to home. If anyone knows a doctor in Georgia, please email me. Thanks, Lisa
Posts: 53 | From Georgia | Registered: Oct 2004
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posted
Hi, Lisa. Welcome to LymeNet. So sorry you've been dealing with this disease so long. Lots of great info here & the people will do everything possible to help you.
I'm not aware of any Lyme Literate Med Dr (LLMD) in Georgia.
posted
Thank you cbb for you posting. I actually had someone email me about a doctor in Georgia, and luckily this doctor is on my insurance. I have called and made an appointment, so I am just going to keep my fingers crossed from here. I will keep your posting in mind for those other doctors though.
Posts: 53 | From Georgia | Registered: Oct 2004
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posted
Thanks for your posting Melanie. We definitely need some support in Georgia. Most doctors still don't think lyme disease exists in Georgia, but I am definitely proof that it does.
Posts: 53 | From Georgia | Registered: Oct 2004
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posted
There are several around Atlanta. They can be found if you really get the word out. There is one in Mobile, Al. If you need to contact him email me at [email protected].
Posts: 219 | From Aubur,Al. USA | Registered: Oct 2004
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posted
I have yet to find a doctor in GA that can accurately treat lyme disease. I went misdiagnosed in this state for 16 years. Once I finally got the dx of lyme, then I still had GA doctors telling me that it does not exist here. I am currently going to Dr J in NC. I am very impressed with their clinic so far, and I feel very comfortable and confidant in their protocol. I am currently on IV's, and they wasted no time getting me started on them after my first visit.
Posts: 53 | From Georgia | Registered: Oct 2004
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Do you know anything about a Dr. R in S.C.?
My LLMD gave me his info, but does not know him personally. He is an ILADS member and fairly close to Atlanta... might make him interesting for our friend if he checks out well.
Does Dr. J always do IV? How is he for costs, especially the out of pocket ones, and how well does insurance cover him?
Were the others that were supposed to be LLMD's in GA that you checked quacks, or just not to your liking as far as treatment preferences etc.?
Sometimes a Dr. that is unsuitable for one person is just right for another... assuming they know what they are doing of course!
Thanks!
Posts: 714 | From San Antonio TX | Registered: Oct 2004
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I bet you have the STARI strain too, that is why you had so much trouble getting it to show on a test. (Just an educated guess.)
Have you made the acquaintance of threefries, who is the one looking for a Dr. there? I'm sure you could share a ton of helpful information with her. She's 18 and could could use a little help finding her way through all this.
How are you doing with your treatment? Feeling any better yet?
Posts: 714 | From San Antonio TX | Registered: Oct 2004
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posted
Dr J is on my insurance plan, so everything is being covered. They usually start people out on orals first. They decided differently with me because I have already gone through one failed treatment. I have also had lyme for 19 years, and my symptoms were only getting worse. I have found from experience that the doctors in GA do not know enough about this disease to treat it accurately and effectively. I would rather travel to a doctor that knows what they are doing. It is only a five hour trip for us, so that is not too bad at all. I have already sent an email to threefries, but I have not gotten a response back. I really do wish her the best, and I really wish I could recommend someone closer. I already know four people from GA that are traveling to Dr J as well. We have all found that GA doctors just don't know how to treat this illness.
Posts: 53 | From Georgia | Registered: Oct 2004
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That is exactly the kind of help a person finding herself in that situation needs.
Just a few months ago my wife and I were in her place trying to find out what to do and where to go for help. It meant so much to find some people with the same problem in our area who already knew the ropes and who were the good Doctors.
People here no doubt saved us untold medical misery we would have had to go through to find out by trial and error.
He sounds like a good Dr. I have never heard a negative comment about him at all. I hope he can get you feeling better too!
Thanks, James
Posts: 714 | From San Antonio TX | Registered: Oct 2004
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Hi there,
Just wanted to throw in my few cents worth here.
I live about 100 miles south of Atlanta and travel to Dr. J in NC. The doc in Mobile didn't accept my insurance and I'm really pleased with the treatment in NC.
It's about a 6 hour drive for me so I go the night before, spend the night, go to my appt. the next day and head back south.
Am on my 6th month of orals and my RNP sees an improvement. Have had lyme for a number of years, at least 10 that I can think of at the moment.
I'm real pleased with my treatment up there and don't believe in coincidences.
Hope you have as much success in treatment as me.
Posts: 6548 | From Columbus, GA | Registered: Jul 2004
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Lisa...make me the 5th person in GA you know that is making the drive to the NC clinic! I just went for the 1st time yesterday am am very impressed. You are going here already? I am seeing C.R. I don't think you'll find a better group any closer to ATL.
DEFINATELY agree that we need SOMETHING like that group here. With Emory, and the CDC here, it is shameful and embarassing that there are no Lyme/Stari experts here.
*off my soapbox now* :o)
[This message has been edited by Bill ATL (edited 08 March 2005).]
Posts: 80 | From ATLantic Seaboard | Registered: Aug 2005
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posted
I am happy to hear that so many people are having good results with Dr J's clinic. It makes me feel more confidant that this is the place I need to be. I know someone else that saw C.R., and she was very impressed with her.
The CDC standards on lyme are riduculous anyway. According to them, I don't have lyme disease. I really wish there was more research being done on this disease. Hopefully it will get to that point in the future. Until now, I guess we are all the guinea pigs in the search for better treatments and a possible cure.
Posts: 53 | From Georgia | Registered: Oct 2004
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David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
This is sort of an aside but, I used live in Atlanta and was pretty impressed with the thoroughness of Emory trained docs. It's a shame that somehow the truth about Lyme hasn't gotten to them because, if they bought in, many of them would probably be very good. What is needed is for a well respected profesor in Internal Medicine and Emory to get interested. Maybe the STARI angle would be apealing from a research "scoop" perspective. David
posted
Hi, I am in Athens Ga and also looking for a doctor. . . sounds like the best are in NC? Please let me know who you all are seeing in the SE (hopefully GA), I really think my 17 yo son has lymes.
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