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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Looking for Lyme Specialist near Alexandria, VA 22304

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Author Topic: Looking for Lyme Specialist near Alexandria, VA 22304
Adam K
Junior Member
Member # 38872

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For about five years I've had symptoms reminiscent of lyme disease, including a stiff/sore neck, weakness and pain in my elbows, a painful lower back, and general fatigue and sluggishness. I've seen numerous family/internal doctors and had numerous blood tests, and all have come back negative for Lyme Disease. I was referred to a rheumotologist when this all started five years back and they ran tests and concluded (after an x-ray, catscan, and MRI of my neck) that it was possibly a bulging disc in my neck. A spinal surgeon agreed this was probably the problem, and because I was in pain and looking for relief, I went forward with a C5-C6 spinal fusion, which had no impact on my neck, elbow, back pain, or fatigue symptoms. The pain has persisted the last five years, and I have seen a chiropractor and physical therapist, who have not had any impact in easing my symptoms. I have a friend with similar symptoms and he is seeing a specialist in Pennsylvania who provided a more in-depth Lyme Disease test (beyond bands 1-10) and actually found he did have the illness. I'm convinced either I have some similar form of the illness or some similar illness that doctors have just not been able to diagnose or not made the effort to diagnose. I'm hoping I can identify a Lyme Disease specialist who can help get the help that I need, as I have lived in pain for five years, and nobody seems to care or been able to help me.

Adam
Posts: 1 | From Alexandria, VA | Registered: Sep 2012  |  IP: Logged | Report this post to a Moderator
faithful777
Moderator
Member # 22872

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sent pm

--------------------
Faithful

Just sharing my experience, I am not a doctor.
Posts: 2682 | From Colorado | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
t9im
Frequent Contributor (1K+ posts)
Member # 25489

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It's amazing there is a controversy to this insidious disease and I've found it easiest to show a couple of u tube video's on the controversy.

http://www.youtube.com/watch?v=PVPRWiukp_M

http://www.youtube.com/watch?v=8yk0C-uX9cU

http://www.youtube.com/watch?v=Mugl-lT5N74&feature=youtu.be

If you watch this video you can see some of the miss diagnosis.

http://www.youtube.com/watch?v=3nIuIF6q8FA&feature=related

http://www.youtube.com/watch?v=V-lHDA863TM&feature=related

Dr. B's Advanced Topics in Lyme disease.

http://researchednutritionals.com/FactSheets/Burrascano's%20Advanced%20Topics%20in%20Lyme%20Disease%20_12_17_08.pdf

This is our Lyme doctor. It took us 8+ months, 9 MD's, 2 Children's Hospital's before we started to learn about the controversy and find him.

http://www.yaledailynews.com/news/2011/apr/05/amid-medical-controversy-children-saved/

He is a saint and I show this to help illustrate how MD's have been prosecuted so normal MD's shy away from doing anything but following the flawed IDSA guidelines.

--------------------
Tim
Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

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Sent you a name and lots of information.
Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
   

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