LymeNet Flash: Canadian patient seeking doctor

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Canadian patient seeking doctor

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Author

Topic: Canadian patient seeking doctor

Rose Fish
Member
Member # 35083

posted

Hi we have a 22 year old daughter that has lyme and already sees a LLMD in the States. There has not been much improvement and was wondering your thoughts on visiting the John Hopkins Hospital to see a Infectious disease doctor that treats lyme? Does anyone have any past experiences on this route. Thanks so much

--------------------
doreen Fishman

Posts: 26 | From Toronto, Ontario | Registered: Nov 2011 | IP: Logged |

dbpei
Frequent Contributor (1K+ posts)
Member # 33574

posted

Don't waste your time and money going to John Hopkins. From what I have read, the doctors there do not believe chronic lyme exists. They are in the same camp as Dr. Alan Steere.

You should post this in the "Seeking A Doctor" section. I know there is an excellent LLMD in New York that many try to get in and see. I have personally not been to him so it might be good for you to hear from some who have...

Posts: 2387 | From New England | Registered: Aug 2011 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Do NOT do it. Wasted time and money.

I believe we have sent you lists of good LLMDs????

Moving to Seeking a Doctor.

Please help Rose with names of doctors.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Ditto with dbpei and Lymetoo on staying away from Johns Hopkins. Infectious Disease doctors have no clue about this horrible disease or its complex treatment!

Perhaps your daughter needs to be treated by another LLMD if she is not seeing any improvement.

I sent you a pm with some suggestions.

Posts: 9020 | From Illinois | Registered: May 2006 | IP: Logged |

TF
Frequent Contributor (5K+ posts)
Member # 14183

posted

Hopkins is local to me. They don't want lyme patients. I went there for a diagnosis. Waste of time and money.

Read their website. It tells their views about lyme. Also, an article in a local paper a few years ago quoted one of their docs saying that they don't want lyme patients as lyme is too controversial.

Posts: 9931 | From Maryland | Registered: Dec 2007 | IP: Logged |

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