posted
My 9 year old seems to have CNS Lyme. Been thru 1 course of IV. Looking for more aggressive/creative/committed rheumatologist or other specialist to work with us. Any suggestions would be Greatly! appreciated.
Posts: 1 | From Hartford, CT | Registered: Sep 2012
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
PM of MD's sent.
It's amazing there is a controversy to this insidious disease and I've found it easiest to show a couple of u tube video's on the controversy.
He is a saint and I show this to help illustrate how MD's have been prosecuted so normal MD's shy away from doing anything but following the flawed IDSA guidelines.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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posted
The best Lyme pediatrician is in CT. PM sent with contact information.
Your son needs to be seen by a Lyme-literate doctor (LLMD) a.s.a.p. Do NOT go to Rheumatologists or Infectious Disease doctors, as they have no clue about this horrible disease or its complex treatment.
Posts: 8991 | From Illinois | Registered: May 2006
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