posted
My internest is sending me to a ID MD; Dr. Feinstein in Poughkeepsies, NY. I have never heard of him and I am reluctant to go to a Dr. who I do not know, if they are LL especially with long term chronic neurological lyme disease flare-ups. Please let me know if anyone has heard of him.
Posts: 46 | From woodstock, NY | Registered: Nov 2012
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posted
Infectious Disease doctors or any other non Lyme-literate ones have no clue about this horrible disease or its complex treatment. You need to be treated by a LLMD.
Posts: 8981 | From Illinois | Registered: May 2006
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- PASS. Don't let one doctor who knows nothing about lyme send you to another who knows nothing. ID doctors subscribe to the IDSA erroneous thinking.
The difference between IDSA and ILADS is explained in links below. But, basically, from the collective experience of lyme patients:
IDSA = ignorance & disaster regarding lyme diagnosis and treatment. Sheer ignorance of other tick-borne infections, too. ID doctors are puppets of the IDSA.
ILADS = a commitment to true education in this field and a commitment to help patients.
Most LLMDs (lyme literate MDs and LL NDs - naturopathic doctors) are familiar with ILADS' work.
You need an LLMD, not an ID doctor. Sadly.
THIS is what an ID doctor will tell you (and he or she would be very wrong):
See listener comments, too. They show us how very wrong the ID doctor is who was interviewed. Very typical, though, and why ID doctors are not the ones who help those with lyme.
posted
You have a great LLMD about 15 miles north in Hyde Park - I would go there ....
Posts: 749 | From State full of ticks | Registered: Dec 2008
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posted
Thank you so much for all your very important information. I have actually had LD since 1987 and been on Lymenet for many. many years. I have Chronic Lyme and this is my 6th relapse. I have lived the Lyme controversy. So I agree with everything you have to say. Your information and Videos will be helpful in sharing them with family and friends. I don't think all of them have wrapped their heads around Chronic Neurological LD and what that means, especially in my life...Grateful
Posts: 46 | From woodstock, NY | Registered: Nov 2012
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posted
Are you currently under the care of a LLMD (Lyme-literate doctor)?
I would recommend your family members and friends read "Cure Unknown" by Pamela Weintraub and view the DVD "Under Our Skin" on http://www.hulu.com/watch/26871/under-our-skin (this was free, don't know if it still is).
These things can probably be obtained at your local library or on Amazon. They would definitely help everyone understand the nature of this horrible disease and the politics surrounding it!!
Posts: 8981 | From Illinois | Registered: May 2006
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posted
Thank you; I am currently under the care of Dr. C of NY; my family has been dealing with me and my lyme disease for over two decades. I do have the dvd "under our skin." it is excellent, but, I am reluctant to tell people that I am having an acute and very bad relapse. I do not want to be the "sick" me once again.
**edited name of LLMD per LN rules**
[ 11-28-2012, 02:29 PM: Message edited by: Lymetoo ]
Posts: 46 | From woodstock, NY | Registered: Nov 2012
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