posted
Sorry for long post but is Dr D in MA a good option or Dr S in large MA hospital?
Symptoms are:
* Gait labored - feet sticking and short steps * Lack of strength in arms and legs * Difficulty in getting out of a seated position, car, couch and bed * Trouble turning over in bed * Hands contracted * More weakness in one side * Left side becoming dominant even though always right-handed * Back and Neck pain * Hand tremor * Shaky feeling especially when stressed * Some balance issues * Handwriting worse and more difficult * Dressing and buttons more difficult * Monthly up-tick of symptoms * Bitten often by all kinds of ticks - other tick-borne illness * Swollen lymph nodes not currently except glands and had biopsy in 2011 * Arthritic feeling in back and hands * Leg cramping * Swollen glands in throat * Fine motor more difficult * Some confusion * Frequent and urgent urination
Tested positive for Lyme (Western Blot) in 2011 as experiencing above symptoms. Cornerstone group convinced me not to treat as in their opinion Lyme makers were latent. At same time had enlarged lymph nodes under arm pits and elected to have biopsy which showed no Lyme in node.
Still experiencing above symptoms in late 2012 and did Western blot and was still positive in almost exact same areas. Decided to go on the antibiotic treatment of doxycline for 30 days which I completed in December, 2012. Still experiencing most of above symptoms.
Symptoms seemed to be mimicking Parkinson's so was tested for that in March. Neurologist - Dr. ** did not diagnose Parkinson's and did not make any other diagnosis other then noting some tremor. CAT Scan was normal.
Went to infectious disease specialist, Dr. G** in March, he wanted to treat only on Center for Disease Control basis one treatment of antibiotics for 30 days which I had already in December so no further options with him.
Back to ** and I decided to do additional blood-work and go back on doxycline for another 30 days. Felt somewhat better while on treatment now that treatment complete feeling worse again.
Next steps see another neurologist or lyme specialist? Try to go on disability?
I had sarcodosis in my 20s with no known reoccurrence. Diagnosed with ADD by Cornerstone in 2011. Think I need full neurological assessment with EKG and MRI?
Please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.
Posts: 8981 | From Illinois | Registered: May 2006
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
I'd go out of state for a better doc.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
I'd agree with Catgirl. I go to DC every 6 months.
-------------------- Adversity is the diamond dust heaven polishes it's jewels with. � Robert Leighton
Daily world-wide prayers welcome for the Lyme Community - every day at 6:00 p.m. Pacific Time and 9:00 p.m. Eastern Time � all faiths welcome! Posts: 309 | From S.E. Mass | Registered: Apr 2006
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dbpei
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Member # 33574
posted
Sending PM.
Posts: 2386 | From New England | Registered: Aug 2011
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