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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Lyme Specialist in MA?

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Author Topic: Lyme Specialist in MA?
Wtfxtayy
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Member # 41439

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My PCP has been very helpful, but just isn't enough anymore. Was diagnosed at age 14 about 5 years ago - severe joint pain, 103.3� fever, and 19 EM lesions. Went on your typical rounds of doxy, though vomited the majority up. Months later, was diagnosed with chronic lyme/post lyme arthritis by a pediatric rheumatologist out of mass general.

I'm looking for a doctor or doctors in the area who specialize in Lyme and are highly recommended - unfortunately I haven't found any that take my insurance. I know mass general has a lyme program, but my insurance is a tier program And mass general is a tier 3 - combine that with the cost of a specialist and its through the roof.

Ideally I'd like to discuss a picc line and whether or not it is even worth it where it's been years since my initial diagnosis. But at age 19... I'd like to not have to worry about not being able to get out of bed...
Posts: 1 | From North Shore, MA | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Member # 743

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That is so sad that you have not received proper treatment in 5 yrs... esp at your age.

Have you been tested for coinfections? You are bound to have babesia at the very least in addition to the Lyme.

Yes it is WORTH IT. I was not diagnosed for 42 yrs and I GOT WELL!!

I'll send you some names.

--------------------
--Lymetutu--
Opinions, not medical advice!
Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Nancy2
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PM Sent!
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hopingandpraying
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PM sent for MA.
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t9im
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The high fever sounds like Babesia is part of the mix.

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Tim
Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
Anthropologista
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Posts: 431 | From New England | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
   

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