posted
I've been seeing a doctor V who is the colleague of another doctor M who IS an LLMD. They two are the only doctors workin in an integrative medcine office. This doctor V mentioned she has been treating a lot of lyme disease patients so I assume she is LLMD
But it turns out not: with my so typical symptoms and IgeneX results she told me I don't have lyme!!!
And she's not willing to prescribe Antibiotics to treat lyme.
What she does prescribed is only 4 weeks of minocycline 100mg/day with her claim that this is not in order to treat lyme but as an anti-inflammation drug to promote immune system.
Yet she is charging the same money as an LLMD not accepting any insurance.
And I would like to know how do I know if a doctor is an LLMD and ILADS trained?
Thank you.
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Edited out doctor's name, per Lymenet rules. - Robin
posted
When I previously called a doctor I was not sure about being LLMD, I asked the receptionist point blank about the doctors stance on Lyme. She was more than happy to tell me the doctors take on Lyme (she was LLMD but I couldn't get in when needed).
Sometimes just asking is the best way!
If that doesn't work, coming here and asking for help has always worked for me
Good luck, LMTB.
Posts: 24 | From Connecticut | Registered: Jan 2010
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posted
you can contact ILADS and ask them if that doctor is a member.
Posts: 991 | From California | Registered: Feb 2006
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Many people do not know this but, unfortunately, being an ILADS member is not enough. Some doctors are becoming ILADS members just to attract patients, but they don't know how to treat lyme disease.
This is what one woman found out recently. She moved on to a new, top notch lyme doctor and was given this information:
"Some dr.s can pay the fee to join ILADS and not necessarily follow or understand all the guidelines with patients. They can claim they are ilads trained and NOT follow guidelines.
There is a question/solution in the works to have dr.s take some kind of exam to test their knowledge of treating lyme before they can join ILADS because apparently this is happening more than it should."
Read the entire thread to see how UNeducated an ILADS doctor can be about lyme disease. It is here:
If you are going to lay down a lot of money to see a lyme doctor, then do a lot of homework first. Ask for input on this board. Get lots of people's recommendations of doctors. Consider the source's knowledge about lyme disease so that you know how much weight to give their opinion.
For example, if person A is new to lyme and just had their first few appointments with their first lyme doctor, they really don't know anything. Give their opinion little weight. (They are a "lyme virgin." They are just happy to find a doctor who believes in lyme, didn't humiliate them, and is willing to treat them. They don't know how to evaulate a doctor yet.)
If person B has gone to about 3-4 lyme doctors and so has something to compare their current lyme doctor to, their opinion of a doctor is more valuable.
If person C has been cured of lyme by a lyme doctor, get that doctor's name!
It is best to go to a doctor who has cured at least 3 people that you are sure of, that someone knows personally.
Do the work up front and you will not likely be disappointed. This is the best way to avoid wasting a lot of money and your time and energy.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Thanks Keebler! Your help is very much appreciated. I was a "Lyme virgin" in your words
Posts: 101 | From nowhere | Registered: Aug 2013
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