6 months ago I was a the peak of health. I open MMA gym trained Dayly.
all of the sudden wham. Problems. first I got tested for stds. I was clean which surprize me cause I has the sysmtoms.
Then diagnosed with epiditimitis,
next with prostatitus.
I was satified for that time but still lots of unexplained sysptoms. Jaw poping, Burn when I drink Alcohol, back pain. meningitis neck ache.ext.
I have been to DR like 10 times in 6 months.
so, next I was sure I had hashimoto's disease. got all tested. tyroid was normal. I told Girlfriend I was sure i had it. I lossed some creibility
That night I got home from being tested I broke out in rash. check rash sysmtoms also eye was red and droopy.
looked into lyme and found the check list reads like my last 6 month. I got half the systoms.
Thinking back I had 1tick on my ankle and pulled it off. got like mosiqto bite with hole in it that iched for 2 weeks maybe. I even said to my co worker "maybe I got a tick head in there cause its been really ichy."
so now I have a tick incedent, a rash, and all the sysmtoms of lyme and my forearm are burning right now.
I called mayo health sys and the got appoint for Jan 2ed. but have not been diagnosed yet.
everything points to Lyme, Please I need some help im scared in pain and people dont seem to understand how much pain im in, And I use to fight in a cage.
-------------------- Live to love another day Posts: 32 | From Minnesota | Registered: Dec 2013
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When you call for an appointment, ask if they have any cancellations or a waiting list. Patients have gotten in sooner by doing this.
You need to be evaluated and treated by a LLMD. Non LLMDs have no clue about this horrible disease and its complex treatment!
A bulls'-eye rash is indicative of Lyme.
Please STAY AWAY from Mayo! The consensus on Lymenet is, "Hold the Mayo!!" because they have no Lyme-literate doctors (LLMDs) on board and those patients who have gone there have said it was a waste of time and money!
posted
Thank You soo much hopingandpraying. I am a family man with childern. I have a full time job. because we still fit the requirement right now. I have MA {medical Assitance} I hope 1 LLMD in MN will accept MA?
-------------------- Live to love another day Posts: 32 | From Minnesota | Registered: Dec 2013
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posted
I'll send you a name for MN. I don't know about their taking medical assistance though.
Don't expect Mayo to be of much help. They will tell you it's all in your head and to just "move on." You would be very lucky to get one month's treatment out of them.
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Not sure how to start a post, so hope you don't mind if I tag on here. I too am looking for a doctor in MN, I have many symptoms of Lymes and recall being bit by a tick weeks ago. My heart rate is also up, chest pains, memory loss, aches, hair loss, along with many others. My doctors I have seen here have cleared my heart and tested for Lymes but it came back neg. They want me to go to Mayo for a work up as they are stumped. Am now rethinking that after reading these blogs, but to whom should I go? My symptoms seem to be getting worse by the day, and the pain is unreal, any advice on who to call would be appreciated. I live in northern MN but I am willing to travel down to the twin cities if need be, I have to deal with this.
Posts: 4 | From MN | Registered: Dec 2013
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Sophie,
Welcome to LymeNet.
Since you are both brand new, you probably could learn a lot by reading the responses we all gave to Hugh here:
Also, click on Support Groups on the left side of the page and find the ones near you. You can ask for lyme doctors names from them.
Personal recommendations are very important when it comes to doctors who specialize in lyme disease. You want to find a doctor who is actually curing people of lyme disease. Many doctors treat lyme, but only a very few know enough to cure people of it.
Since you are feeling so poorly, I suggest you go to a walk-in clinic right away and tell them about the tick bite and all that has happened since. They should generally give you about 2 weeks of meds. That will help some, but it certainly is not enough. You may have to go to 2 or more walk-in clinics to get additional help.
It is very tough to find a doctor quickly who realizes that lyme must be treated long-term. So, make as many contacts as you can. Also, make the best use of the walk-in clinics.
Just know that it can take several weeks for a lyme test to come back positive after a bite. That is because the test is not looking in your blood for the lyme germ. Instead, it is looking to see if your body has made any antibodies to the lyme germ. It takes time for the body to do that.
So, do not give up just because one or two or more lyme tests come back negative. A good lyme doctor knows this happens a lot and will give you a course of lyme treatment to see how you respond.
Also, to start your own post, just click on "Post new topic" right above the word "directory" near the top of the page.
Starting your own post will get you the most help with doctors names. Make the title of your post "Need lyme doc in (states you are interested in)."
We will help you here all we can.
"Lyme Borreliosis (LB) is diagnosed clinically, as no currently available test, no matter the source or type, is definitive in ruling in or ruling out infection with these pathogens, or whether these infections are responsible for the patient's symptoms."
"After a tick bite, serologic tests (ELISA. IFA, western blots, etc.) are not expected to become positive until several weeks have passed. Therefore, if EM is present, treatment must begin immediately, and one should not wait for results of Borrelia tests. You should not miss the chance to treat early disease, for this is when the success rate is the highest. Indeed, many knowledgeable clinicians will not even order a Borrelia test in this circumstance."
quotes from page 7 of Burrascano Lyme Treatment Guidelines found here:
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