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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Lyme Literate Neurologist in Boston

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Author Topic: Lyme Literate Neurologist in Boston
sweet-sprig
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My daughter is in decline. Its time to get some scans.
Thank you
Posts: 8 | From northeast | Registered: Mar 2013  |  IP: Logged | Report this post to a Moderator
hopingandpraying
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Member # 9256

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Welcome to Lymenet! I don't know of any in MA, but there is one in CT (sent you contact info).

Check the online state Lyme groups at: http://health.groups.yahoo.com/group/massachusettslyme

Maybe they can help you.

Some more resources for you:
www.lyme-aware.org/massachusetts.html
www.s-l-a-m.org

The top LLMD, Dr.H, has written a new book entitled, "Why Can't I Get Better?". It is a very good source of information.

Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com
Posts: 9020 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
gmb
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Do you have a LLMD? If not make an appointment ASAP. I wasted over a year with a neuro and then another six month with a rheumy.

A SPECT scan may provide the best results and more and more labs are learning to distinguish Lyme issues from MS. Maybe your PCP can order this test. Its the only test out of many others that had a positive Lyme diagnosis.

gmb
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Nancy2
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PM Sent!
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